Courage Pages provide an opportunity for your family to share your unique story and assist you in raising awareness for MPS and allied diseases. Your unique Courage Page can be for, in honor, or in memory of your loved one with MPS, and can be a great tool for fundraising. How you use your Courage Page is up to you!
Need inspiration? Curious to learn about other families stories? Scroll to the bottom of this page to view a full list of our current Courage Pages!
Our hope is that your Courage Page enables you to share your rare disease story with loved ones, friends, colleagues, physicians, legislators, and anyone that wants to learn more about MPS and allied diseases. Your story can include multiple photos and be updated as often as you like!
Courage Pages are also a terrific platform for fundraising.
MPS Society families have raised over $100,000 through Courage Pages and allocated the funds as they wanted – whether this is for syndrome specific research, family support, or legislative efforts.
Click here to create a Courage Page!
Need to update your Courage Page? Log in to your account and select “My Courage Pages.” Click “see more” to edit and submit your new Courage Page.
Please scroll through the list of families and friends that have a Courage Page below, and click the links to access their pages. Pages can be viewed in alphabetical order by clicking on the arrows to the right of the “Child’s Name” header.
If you are interested in building your own Courage Page, it’s easy! If you prefer the Society build a page for you, please contact us. If you need a form mailed to you please contact Amy Downen at amy@mpssociety.org or call 919.806.0101.
Colin is a wonderful kid. He loves to play with kickballs. He has a deep, beautiful laugh. He has now gone on to…
Keller is a fun loving two year old little boy that loves his football team the Dallas Cowboys! He enjoys any sport…
Annabelle is 11 years old diagnosed with MPS IV as a baby. Annabelle lives in McLean, VA with her 2 younger sisters,…
