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Press Releases

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17 Mar, 2025

    The Wain Family’s Journey

    The Wain family’s journey with MPS began in 1987 when their firstborn, Matthew, was diagnosed with MPS I....

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    17 Mar, 2025

      Spring 2025 Courage

      Click here to read the latest edition of Courage online, or click here to download a PDF copy.

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      13 Mar, 2025

      Racing Against Time: the Torbert Family’s Story

      "MPS II, also known as Hunter Syndrome, has been a part of my life for as long as I can remember. I grew...

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      5 Feb, 2025

        National MPS Society Appoints Dr. Scott Loiler as Chief Scientific Officer

        DURHAM, N.C. (February 5, 2025) – The National MPS Society is pleased to announce the appointment of Dr....

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        27 Jan, 2025

          A Mother’s Relentless Fight: Jacob’s Journey with MPS IIIB

          For most of his 10 years, Jacob has been a puzzle. Born prematurely, he faced challenges from the start....

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          15 Jan, 2025

          Angels Among Us: Remembering Our Loved Ones

          Angels Among Us: Remembering Our Loved Ones Each year, we remember individuals with MPS or...

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          3 Jan, 2025

          A Life of Passionate Curiosity: Autumn’s Journey with MPS VI

          Autumn M. was diagnosed with Mucopolysaccharidosis VI (MPS VI) at just 18 months old, at a time when no...

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          12 Dec, 2024

          In Loving Memory: Eddie Bell Jr.

          Eddie James Bell Jr. was born on July 29, 1981, and brought love and light to all who knew him until his...

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