We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual...
Our 2024 Fall edition of Courage is now available electronically to view or download! Click to read the...
"I was born with a rare disease without even knowing it," explains Fanny Z., a 14-year member of the Society...
Lucas was the youngest of four children. From the start, he stood out—not just as the baby of the family, but...
From Terri Klein, President & CEO: Over four years ago, Dr. Matthew Ellinwood came to work...
Benji C. is a strong, confident, self-assured, loud, and determined 8-year-old with MPS I. When Benji was...
Let us introduce you to Jacob Ray (J.R.) Anton, one of the many faces of MPS. J.R., who passed away...
The National MPS Society is pleased to share an update on RGX-121, an investigational gene therapy for MPS II...