"Before our sweet son Abe’s MPS I diagnosis in 2024, we had no knowledge of MPS, no idea that we were...
The National MPS Society is delighted to announce that Sharon King has joined the team as our inaugural Chief...
Sebin, the third of four siblings, has spent nearly her entire life in the hospital, including time in the...
"I was misdiagnosed at age seven with Spondyloepiphyseal dysplasia after early signs of skeletal...
Durham, NC — April 15, 2025 — The National MPS Society welcomes the news that Spruce Biosciences is now...
In 2020, in the quiet hum of a hospital NICU, Lauryn and her husband began a journey no parent ever...
The Society praises Dr. Marks' leadership at the FDA and urges continued strong leadership to advance MPS...
"In 2018, our family welcomed our youngest daughter, Raelin, into the world. From the moment she was born,...
