Family Conferences
You are invited to join us in Bethesda, Maryland for our 37th Annual Family Conference! Located just outside of Washington, D.C., this conference will feature a day of science and advocacy sessions as we meet with the FDA and NIH, and a second day with family conference sessions, care management tracks, and a SPIRIT conference for our adults with MPS or ML (ages 18+). Make plans to come to Maryland on September 28-30th to be a part of the event!
This conference will take place at the Hyatt Regency Bethesda Hotel. For more information and to register, please click here.
Our Connected Together conference will begin on Thursday, September 28 with dinner and breakout sessions. Science and advocacy sessions on Friday will bring you directly into conversations with policymakers and those making decisions about clinical studies and treatments. Adults with MPS or ML will enjoy time together on Saturday, learning about topics they have requested, as families join for sessions relevant to their needs.
We will offer scholarships for families to attend the conference, and for adults to participate in the SPIRIT conference. Click here for scholarship information. All applications must be completed online by July 17, 2023. Scholarships are limited, and prioritized for those who have not been to a conference in person before. Anyone planning to attend should book their rooms early to ensure a space in the block, which provides the best rate per night until it sells out.
Following the conference, we will hold our popular Speakers’ Bureau program in Washington, D.C.! Members interested in attending will be trained in how to share their stories, updated on legislation relevant to the MPS and ML community, and go to Congress to meet face-to-face in meetings on Monday, October 2. The Speakers’ Bureau program offers scholarships to participants. To register for more information and indicate your plans to attend Advocacy Day, click here.
