Courage Pages

Welcome to Courage Pages!  Creating a Courage Page provides an opportunity for your Family to share your unique story, including pictures, to assist you in raising awareness for MPS and related diseases. This page can be for in Honor or in Memory of someone with MPS or a related disease and can be used for Fundraising. What is important is that you decide!

Our hope is that through Courage Pages, you are enabled to share your rare disease story with loved ones, friends, colleagues, physicians, legislators and anyone that wants to learn more about MPS and related diseases. Your story can include multiple photos and be updated as often by you as often as you like!

This is a terrific platform for raising funds and to tie into a fundraising event, you decide! Families have raised over $100,000 through Courage Pages and allocated the funds as they wanted – whether this is for syndrome specific research, family support or legislative efforts.

Ready to get started?

First begin by registering for your new page!  Register now.

We have created these detailed directions to help you with registering, creating and editing your page. We will do our very best to keep directions updated during software changes.

Already have an account? Log in to the left under Update Page.

Want to visit other Courage Pages?

Please scroll through the list of Families and Friends that have a Courage Page below and click the link to access their page.  These can be viewed in alphabetical order by clicking on the arrows to the right of the Child’s Name header.

If you are interested in building your own webpage for your loved one it is easy!  If you prefer for the Society to build the page for you, we have an online application you can fill out. If you need a form mailed to you please contact Terri Klein at terri@mpssociety.org or call 919.806.0101.

Image Child's NameSyndrome
nullMuller, RileyMPS II
Brown, Tyson MPS I
Walker, TrinityMPS IIIA
Whitecotton, ScottyMPS II
McGoey, ShaneMPS II - Friend
Gibson, ShaneMPS IIIA
Caswell, SamMPS I
Zeighami, RoyMPS IIIA
Pinchak, RaymondMPS II
Whitaker-Russell, MichaelMPS II
Mongan, MauraMPS I
Klenke, KraigMPS II
Gegenheimer, KaliMPS I
Joyce, KathleenMPS I
Guajardo, KarinaMPS IIIA
Todd, JackMPS II
Klein, JenniferML III
Dunn-Kraus, JacksonMPS II
Michalik, CalebMPS II
Beam, HunterMPS II
Roman, HudsonMPS II
Holland Family, Steve MPS I
Hardesty, Mackenzie & IsabellaMPS VI
Kimminau, EddieMPS IVA
Abel, EvanMPS IIIC
Miller, DannyMPS II
Yard, ChristianMPS II
Tippett, CooperMPS IVA
Kanney, Carter MPS II
Karas, BethML III - Sister
Allen, AshleyMPS I
Perez, AnaleeML II
Cherrstrom, Alex and Nick MPS II
Von Handorf, AlysonMPS IIIA
Kirch, AllisonMPS IIIA
Charest, AlanMPS IIIB
Bozarth, AnnabelleMPS IVA
Athy, AaronMPS I
Thompson, MadisonML III
Belisle, RyderMPS III
Swanson, KatieMPS VI
Sanchez, ChristopherMPS IVA
Hughes, AnalynnMPS I
Berning, ColinMPS III A
Humphrey, FionaMPS III A
Donahue, JuliaMPS IVA

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Contact Us Family Support Programs