Courage Pages

Courage Pages give your family a special space to share your story and rally support for a cause close to your heart. Each Courage Page is unique to your journey with MPS or ML and can be created in honor, in memory, or in celebration of a loved one. Your Courage page is a space to raise awareness, advocate, and fundraise for who and what matters the most to you.

Looking for inspiration? Scroll down to explore the full list of Courage Pages and see the amazing ways our community is making a difference!

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Young girl in a superhero mask and cape at MPS awareness event

Courage Pages enable you to share your rare disease story with loved ones, friends, colleagues, physicians, legislators, and anyone that wants to learn more about MPS and ML. Your story can include multiple photos and be updated as often as you like!

Courage Pages are also a terrific way to fundraise for the National MPS Society.

Society families have raised over $100,000 through Courage Pages. These funds are then allocated within the National MPS Society however the family raising them decides – whether this is for syndrome-specific research, family support, or legislative efforts.

Ready to get started?

Click here to create a Courage Page!

Need to update your Courage Page? Log in to your account and select “My Courage Pages.” Click “see more” to edit and submit your new Courage Page.

Three friends at a cycling race to raise funds for MPS

Want to visit other Courage Pages?

Please scroll through the list of families and friends that have a Courage Page below, and click the links to access their pages. Pages can be viewed in alphabetical order by clicking on the arrows to the right of the “Child’s Name” header.

If you are interested in building your own Courage Page, it’s easy! If you prefer the Society build a page for you, please contact us. If you need a form mailed to you please contact Amy Downen at amy@mpssociety.org or call 919.806.0101.