Alan was born into this world a happy smiling child like all children. He took longer to walk than most and by age two his speech was well behind where it should have been. We were lucky to have a diagnosis by age three which allowed Alan to be eligible to take the risk of a bone marrow transplant in the hopes of relieving some of his future suffering. Alan was lucky to survive the transplant and even luckier that it has helped reduce his physical symptoms. Alan has reached what only 20% of San Filippo children reach and that is his 18th birthday. As Alan’s guardian, I look back and thank all that have given hope. Please continue to give hope through a kind word or any contribution you can make. We have made it this far because of your support and we look forward to tomorrow with your continued blessings.
We survived the hardship of COVID and it was also the push that moved Alan to homeschooling. Alan will continue to take advantage of the education program Arizona has in place for stay at home children and will do so for as long as the system will let him. Alan is taken care of by medicaid and in Arizona we have been able to have most things we have pursued taken care of. Key phrase is pursued and the the notion you have to pick your battles fully applies.
The current activities are water therapy in the swim spa acquired in 2023, an addition to the house in 2024 early 2025 to enclose the swim spa for year round and round the clock enjoyment. In 2023 Make a Wish installed a bricked pathway in our back yard as it was Alan’s wish to continue to walk and roll with daddy where we have always walked laps in the backyard. We will be adding some water features and a mural to enhance lounging on our 2 palm tree desert island. We don’t vacation very far but in our backyard we can totally escape and be happy. Thanks for the hope for today and the hope that one day there will be a cure.
We ask that you continue to provide hope for tomorrow, more smiles and more laughs.
To follow more of my story visit Alan’s caringbridge page!https://www.caringbridge.org/site/1a610bd7-7e84-39d0-88a3-90d13d58f2de
"*" indicates required fields
