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Links and Resources

MPS and ML Library

Our library includes details on each MPS and ML syndrome type, as well as fact sheets that cover a broad range of the MPS experience.

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18 Jul, 2023

Our Voices Episode 15: Grief, Legacy, and Hope with Dr. Klane White

LAUNCHING JULY 25, 2023 Dr. White speaks with host Jason Madison about his personal connection with MPS,...

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26 Jun, 2023

Our Voices Episode 14: The Journey of a Biochemical Genetic Fellow with Mary Kate LoPiccolo

Dr. Mary Kate LoPiccolo connects with host Jason Madison to discuss medical biochemical genetics and working...

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14 Jun, 2023

37th Annual Family & Scientific Conference

You are invited to join us in Bethesda, Maryland for our 37th Annual Family Conference! Located just outside...

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1 Jun, 2023

Harboring Hope

In recognition of International MPS Awareness Day, it is an honor to share Harboring Hope, a short film...

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23 May, 2023

Independent Living, Guidance for Parents

For many individuals, independent living means having every opportunity to be as self-sufficient as possible.

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9 May, 2023

Test Audio Resource

This is my test audio resource!

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