Mobile Divider Image

Society Sponsored Events

The National MPS Society hosts a handful of events around the country every year! Click the button below for upcoming events, or see a selection of our past sponsored events further down the page.

Inflatable arch at the starting like of an MPS 5k fundraising run

Past Events

Feb 17
Zumba Dancing for a Cure
Calabash NC

March 4
Lacerta 5K for MPS
Alachua FL

March 25
Raleigh Run for Rare
Raleigh NC

April 22
Keller’s 5K
West End NC

April 29
Hoops for Hurlers
Covington LA

April 30
Napa MPS Race for a Cure
Napa CA

May 13
Maritime Gala
Tiburon CA

May 13
Garabito Family 5K
Perth Amboy NJ

May 14
Jack Bennett Memorial Ride
Thousand Oaks CA

May 19
Remembering Ryan 10th Annual Beat MPS Golf Scramble
Wilmington DE

June 10
Million Dollar Bike Ride
Philadelphia PA

June 25
12th Concert for the Cure
Sellersville PA

October 6
11th Annual Do It Fore Dan Golf Tournament
Moccasin Run Golf Course
402 Schoff Road
Atglen PA

October 14
32nd Annual Post Office Café 5K Run and 1K Fun Run
Post Office Cafe
130 W. Main Street
Babylon NY

October 22
Long Beach 5k
Long Beach CA

Oct 27-Nov 5
Big Bake for MPS and ML

November 28
Giving Tuesday

Check out a few of the events we have hosted so far:

August 6, 2022: National MPS Society Walk and Roll 5K Run and 1-Mile Family Walk

The National MPS Society hosted the Walk and Roll Run as a part of the 36th Annual Family Conference in Nashville, Tennessee, on August 6th. With a course running through the heart of Centennial Park, this run saw a total of 300+ registrants who helped the Society raise over $20,000! Snow cones, cotton candy, an obstacle course, and more fun activities made the lunch following the race extra special– even Spiderman attended! Click here to view the photo gallery from the Family Conference weekend.



Swoosh Image

June 11, 2022: Million Dollar Bike Ride

The Penn Medicine Orphan Disease Center (ODC) hosted the 9th Annual Million Dollar Bike Ride on Saturday, June 11 in Philadelphia. The Ride typically brings over 750 cyclists and volunteers to Penn’s campus to ride either 13, 34, or 72 miles. In eight years, the MDBR’s 30+ teams have raised over $14 million to fund research grants on the diseases they represent. All funds raised through Million Dollar Bike Ride, up to $30,000, were matched dollar for dollar through the Orphan Disease Center and dedicated to rare disease research.

The National MPS Society and Team MPS raised over $30,000 for the 2022 Million Dollar Bike Ride. Thank you for your support! Click here to view the photo gallery from the event.

cyclists pose with the banner for an MPS fundraising event

Group gathers at a gazebo for a group photo after the Napa Race for a Cure event

May 1, 2022: Napa Race for a Cure

The MPS Napa race for a Cure was held May 1st at Kennedy Park in Napa, California. The timed and chipped 5K Run and 1-Mile Family Walk had over 550 registrants who helped raise awareness and funds for MPS and ML, both in person and virtually. After the run attendees enjoyed a picnic lunch as well as a photo booth, caricature artist and raffle.

We were able to raise over $44,000 with the help of our attendees, sponsors and donors. Thank you to all who worked to make this event so successful! Click here to view the photo gallery from the event.

March 26, 2022: Raleigh Run for Rare

This was our first year back in person for the Raleigh Run, with the option to participate virtually! This event saw 549 registrants from across the country and raised more than $42,000. Thank you to our sponsors, and to friends and families that supported the event! Click here to view the photo gallery from the event.

Family of three poses at MPS fundraising walk/run

Boy in chefs hat and apron in the kitchen with a red mixer

October 29 – November 6, 2021: The Big Bake for MPS and ML

The second annual Big Bake for MPS and ML Research was a huge success!

Families took advantage of this unique time at home to raise awareness and funds for MPS and ML. They came together with family to create treats from their favorite recipes, and shared them with friends and neighbors! The event began with a cooking class hosted by Dr. Matthew Ellinwood on Facebook Live.

The Big Bake for MPS and ML Research raised $16,000. Look for this event next fall!