The National MPS Society hosts a handful of events around the country every year! See our list of 2022 sponsored events below:

March 26: Raleigh Run for Rare
Dorothea Dix Park
Raleigh, NC

May 1: Napa MPS Race for a Cure (tentative date)
Kennedy Park
Napa, CA

June 11: Million Dollar Bike Ride
University of Pennsylvania
Philidelphia, PA

August 4-6: National MPS Society Annual Family Conference
Sheraton Music City
Nashville, TN

August 6: Nashville Rock and Roll Run
Centennial Park
Nashville, TN

September 10: Sprint to Save Run
Shoreline Aquatic Center
Long Beach, CA

September: Battle for MPS
Location TBD
San Antonio, TX

October 28-November 5: The Big Bake for MPS and ML

November 29: Giving Tuesday

Check out a few of the events we hosted in 2021

March 27, 2021: Virtual Raleigh Run for Rare

This year was our second virtual Raleigh Run!. The virtual event was a huge success, raising over $83,000 from 700 participants Thank you to our sponsors, and to friends and families that supported the event from their homes! Click here to view the photo gallery from the event.

May 2, 2021: Virtual Napa Race for a Cure

This year we celebrated our first virtual event to honor the Napa Race for a Cure! Following the Raleigh event, the Napa race engaged families across the country raising $42,000 from 450 participants. Click here to view the photo gallery from the event.

May 15, 2021: A Night Off Broadway Virtual Gala

The National MPS Society hosted “A Night Off Broadway”, in honor of MPS Awareness Day. This event featured Broadway performances, magic, and a live and silent auction. The virtual gala raised over $200,000 to support the mission of the National MPS Society!

June 12, 2021: Million Dollar Bike Ride *Virtual* in conjunction with University of Pennsylvania’s Orphan Disease Center

The Million Dollar Bike Ride traditionally hosted at the University of Pennsylvania was virtual this year! Participants engaged in weekly challenges then rode from home in a live-streamed cycling class on June 12! All funds raised through Million Dollar Bike Ride, up to $30,000, were matched dollar for dollar through the Orphan Disease Center and dedicated to rare disease research.

The National MPS Society and Team MPS raised over $42,000 for the 2021 Million Dollar Bike Ride. Thank you for your support!

October 29 – November 6, 2021: The Big Bake for MPS and ML

The second annual Big Bake for MPS and ML Research was a huge success!

Families took advantage of this unique time at home to raise awareness and funds for MPS and ML. They came together with family to create treats from their favorite recipes, and shared them with friends and neighbors! The event began with a cooking class hosted by Dr. Matthew Ellinwood on Facebook Live.

The Big Bake for MPS and ML Research raised $16,000. Look for this event next fall!

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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