The National MPS Society hosts a handful of events around the country every year! See our list of 2021 sponsored events below:

March 27: Virtual Raleigh Run for Rare

May 15: National MPS Society Virtual Gala

June 12: Million Dollar Bike Ride

June 19/20 and 26/27: National MPS Society Virtual Family Conference

Fall 2021: Virtual Napa Race for a Cure

October 29-November 6: The Big Bake for MPS and ML Research

Check out a few of the events we hosted in 2020:

March 28, 2020: Raleigh Run for Rare *Virtual*

The Raleigh Run was converted to a virtual run due to COVID-19 restrictions. The virtual run was a huge success, raising over $35,000. Thank you to our sponsors, and to friends and families that supported the event from their homes! Click here to view the photo gallery from the event.

Jacob, Raleigh Run for Rare, March 2020

June 13, 2020: Million Dollar Bike Ride *Virtual* in conjunction with University of Pennsylvania’s Orphan Disease Center

The Million Dollar Bike Ride traditionally hosted at the University of Pennsylvania was virtual this year! Participants engaged in weekly challenges then rode from home in a live-streamed cycling class on June 13! All funds raised through Million Dollar Bike Ride, up to $30,000, were matched dollar for dollar through the Orphan Disease Center and dedicated to rare disease research.

The National MPS Society and Team MPS raised over $49,000 for the 2020 Million Dollar Bike Ride. Thank you for your support!

Please click here to view the photo gallery.

October 30 – November 7, 2020: National MPS Society Bake Off and Bake Sale

The first annual Big Bake for MPS and ML Research was a huge success!

Families took advantage of this unique time at home to raise awareness and funds for MPS and ML. They came together with family to create treats from their favorite recipes, and shared them with friends and neighbors! The event ended with a cooking class hosted by Dr. Matthew Ellinwood where paticipnats baked an apple pie!

The Big Bake for MPS and ML Research raised $17,000. Look for this event next fall!

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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