The National MPS Society hosts a handful of events around the country every year!

March 28, 2020: Raleigh Run for Rare *Virtual*

The Raleigh Run was converted to a virtual run due to COVID-19 restrictions. The virtual run was a huge success, raising over $35,000. Thank you to our sponsors, and to friends and families that supported the event from their homes! Click here to view the photo gallery from the event.

Jacob, Raleigh Run for Rare, March 2020

June 13, 2020: Million Dollar Bike Ride *Virtual* in conjunction with University of Pennsylvania’s Orphan Disease Center

Join us for the 2020 Million Dollar Bike Ride! Participate in weekly challenges, then ride from home in a live streamed cycling class on June 13! All funds raised through Million Dollar Bike Ride are matched dollar for dollar through the Orphan Disease Center, and dedicated to rare disease research.

Click here to register.

Click here to donate.

Click here to learn more about the different weekly challenges.

November 7, 2020: National MPS Society Bake Off and Bake Sale

Join the National MPS Society for a virtual bake-off and bake sale this fall! 

Take advantage of this unique time at home to raise awareness and funds for MPS and ML. Come together with your family to create treats from your favorite recipes and share them with your friends and neighbors! Use this as an opportunity to teach them about MPS and ML and raise funds for programs at the Society.

Click here for more information.

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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