MPS Events

We have some great events coming up! Click on the title for more information.

October 4: Do it Fore Dan Golf Tournament

12:30 p.m. – Moccasin Run Golf Course, Atglen, PA

October 12: Keller’s Carnival 

11:00 a.m. – Formerly Cagle Furniture, Cameron, NC

October 19: Post Office Cafe 28th Annual 5K Run & 1K Fun Run

9:30 a.m. – Post Office Cafe, Babylon, NY

December 19-20: 33rd Annual National MPS Society Conference

Hilton Lake Buena Vista, Orlando, FL

December 20: Destination Disney 5K Run/Walk

8:00 a.m. – Falcon’s Fire Golf Course, Kissimmee, FL

December 21: SPIRIT Conference

8:30 a.m. – Hilton Lake Buena Vista, Orlando, FL

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October 2019

Do it Fore Dan Golf Tournament

October 4 @ 12:30 pm - 6:00 pm
Moccasin Run Golf Course, 402 Schoff Road
Atglen, PA 19310 United States

Please join our family as we host the 8th Annual Do It ‘Fore’ Dan Golf Tournament to raise money for medical research seeking cures and treatments for the devastating disease, MPS (Mucopolysaccharidoses).  This condition has affected many lives in the tri-state area and around the United States and sadly has taken the lives of many as well.There are seven different types of MPS and our son Dan, had MPS type II or Hunter Syndrome. Dan fought an incredible battle against…

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Keller’s Carnival

October 12 @ 11:00 am - 3:00 pm
Formerly Cagle Furniture, 200 H M Cagle Drive
Cameron, NC 28326 United States
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Post Office Cafe 28th Annual 5K Run & 1K Fun Run

October 19 @ 9:30 am - 1:30 pm
Post Office Cafe, 130 W. Main Street
Babylon, NY 11702 United States

Run for Fun...Race for a Cause! Please join us for the Post Office Cafe's 28th Annual 5k Run & 1K Fun Run! A pre-race party kicks off the festivities Friday Night, October 18th from 4:00pm-8:00pm. Runners can pick up their T-Shirts and Race Numbers and enjoy a complimentary buffet and drink! Same day race registration begins 8:00am on Saturday, October 19. The 1K fun run starts at 9:30am. The 5K starts at 10:00am. The event is in memory of Mark…

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December 2019

33rd Annual National MPS Society Family Conference

December 19 @ 1:00 pm - December 20 @ 9:00 pm
Hilton Lake Buena Vista, 1751 Hotel Plaza Blvd
Lake Buena Vista, FL 32830 United States

The National MPS Society invites you to attend its 33rd Annual Family Conference and celebrate the Society’s 45 years of achievements. The conference will be held at Hilton Orlando Lake Buena Vista in Lake Buena Vista, FL, Disney Springs™ area.   The meeting begins Thursday afternoon with sessions, followed by dinner and breakout sessions. Newly diagnosed families will join together Thursday evening to hear disease overviews, and share their experiences and strategies for coping. Our members have shared that research,…

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Destination Disney 5K Run/Walk

December 20 @ 8:00 am - 11:00 am
Falcon’s Fire Golf Course, 3200 Seralago Blvd
Kissimmee, FL 34746 United States

Join us for a 5K run and 1 mile walk at the Disney Family Conference. This event will take place on Friday, December 20 before conference sessions begin. Participants will be bused to the run site at Falcon's Fire Golf Course. 

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SPIRIT Conference

December 21 @ 8:30 am - 3:00 pm
Hilton Lake Buena Vista, 1751 Hotel Plaza Blvd
Lake Buena Vista, FL 32830 United States

The National MPS Society invites you to attend a conference specific for adults with MPS and ML, ages 18 and up: “Finding Our SPIRIT.” We have worked with the Adult Resource Committee, spoken with you, and reviewed evaluations to determine things that are most important to you. Through this, we incorporated formal meeting time and time for you to spend with your peers on your topics of interest. The SPIRIT conference will take place on Saturday, December 21 from 8:30am -…

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Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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