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March 2021

Virtual Raleigh Run for Rare

March 27

March 27, 2021 Join us for the 2021 Virtual Raleigh Run for Rare! Participate in a 5K Run or 1 Mile walk from in your neighborhood. Take a photo and share your results, winners will be chosen from each age group. Click here for more information and to register for the event. 

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May 2021

National MPS Society Virtual Gala, 2021

May 15 @ 6:00 pm - 11:00 pm

More information regarding our 2021 Virtual Gala COMING SOON!  

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June 2021

35th Annual National MPS Society Family Conference, 2021

June 19 - June 27
Virtual United States

SAVE THE DATE! -- Join us June 19-20 and 26-27 for our 35th Annual Family Conference!   Taking place virtually, this conference will focus around the theme of remaining connected and the overlap within diagnoses, but highlight and recognize the uniqueness of each through individualized sessions for each syndrome type. The conference features clinicians, scientists, researchers, FDA representatives, advocacy, family support, and much more. Registration information coming soon!

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The National MPS Society exists to cure, support and advocate for MPS and ML.

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