MPS Events
We have some great events coming up! Click on the title for more information.
October 4: Do it Fore Dan Golf Tournament
12:30 p.m. – Moccasin Run Golf Course, Atglen, PA
11:00 a.m. – Formerly Cagle Furniture, Cameron, NC
October 19: Post Office Cafe 28th Annual 5K Run & 1K Fun Run
9:30 a.m. – Post Office Cafe, Babylon, NY
December 19-20: 33rd Annual National MPS Society Conference
Hilton Lake Buena Vista, Orlando, FL
December 20: Destination Disney 5K Run/Walk
8:00 a.m. – Falcon’s Fire Golf Course, Kissimmee, FL
December 21: SPIRIT Conference
8:30 a.m. – Hilton Lake Buena Vista, Orlando, FL
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October 2019
Do it Fore Dan Golf Tournament
Please join our family as we host the 8th Annual Do It ‘Fore’ Dan Golf Tournament to raise money for medical research seeking cures and treatments for the devastating disease, MPS (Mucopolysaccharidoses). This condition has affected many lives in the tri-state area and around the United States and sadly has taken the lives of many as well.There are seven different types of MPS and our son Dan, had MPS type II or Hunter Syndrome. Dan fought an incredible battle against…
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Post Office Cafe 28th Annual 5K Run & 1K Fun Run
Run for Fun...Race for a Cause! Please join us for the Post Office Cafe's 28th Annual 5k Run & 1K Fun Run! A pre-race party kicks off the festivities Friday Night, October 18th from 4:00pm-8:00pm. Runners can pick up their T-Shirts and Race Numbers and enjoy a complimentary buffet and drink! Same day race registration begins 8:00am on Saturday, October 19. The 1K fun run starts at 9:30am. The 5K starts at 10:00am. The event is in memory of Mark…
Find out more »December 2019
33rd Annual National MPS Society Family Conference
The National MPS Society invites you to attend its 33rd Annual Family Conference and celebrate the Society’s 45 years of achievements. The conference will be held at Hilton Orlando Lake Buena Vista in Lake Buena Vista, FL, Disney Springs™ area. The meeting begins Thursday afternoon with sessions, followed by dinner and breakout sessions. Newly diagnosed families will join together Thursday evening to hear disease overviews, and share their experiences and strategies for coping. Our members have shared that research,…
Find out more »Destination Disney 5K Run/Walk
Join us for a 5K run and 1 mile walk at the Disney Family Conference. This event will take place on Friday, December 20 before conference sessions begin. Participants will be bused to the run site at Falcon's Fire Golf Course.
Find out more »SPIRIT Conference
The National MPS Society invites you to attend a conference specific for adults with MPS and ML, ages 18 and up: “Finding Our SPIRIT.” We have worked with the Adult Resource Committee, spoken with you, and reviewed evaluations to determine things that are most important to you. Through this, we incorporated formal meeting time and time for you to spend with your peers on your topics of interest. The SPIRIT conference will take place on Saturday, December 21 from 8:30am -…
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