The annual award recognizes exceptional patient leadership advocacy in the field of lysosomal disease. Presentation will take place Monday, February 8, 2021 at the 17th Annual WORLDSymposium.
The recommended framework would qualify many individuals with MPS and ML to be among the first recipients of a COVID-19 vaccine when it becomes available.
National MPS Society Bake Sale and Bake Off starts October 30 – November 7!
Our Virtual Family Conference has concluded but registered attendees can still access it on-demand through October 12th!
Now recruiting patients born in: California, Michigan, New Jersey, New York This study is also recruiting any patients in any state who have privately banked cord blood and would provide a single-drop sample. Please contact Leslie Urdaneta directly if interested. This study is recruiting patients with MPS I (attenuated: Hurler-Scheie or Scheie Syndromes), MPS II, … Continued
This is a second round of funding for the 2020 Society Research Program.
Congratulations to all of this year’s recipients! We’re proud to share their stories and support their journeys.
The National MPS Society is pleased to announce the hiring of its inaugural Chief Scientific Officer (CSO), N. Matthew Ellinwood, D.V.M. Ph.D.
Current Study demonstrates potential to provide treatment to both prevent and reverse blindness for individuals with MPS I
We are dedicated to providing our members with the latest information and support around COVID-19. We are pleased to offer the following resources to our membership and will continue to update these regularly as the situation necessitates. Coronavirus General Information Severe COVID-19 Complications and MPS and ML Patients Clinical Trial Updates During COVID-19 Infusion Considerations … Continued
Thank you for your interest in the MPS/ML Support Sessions. This page will be maintained to provide details for active and upcoming Zoom webinar sessions. All sessions are free and open to members of the National MPS Society and to individuals and families with MPS and ML internationally. To sign up to receive regular emails … Continued
We’re excited to share all of the groundbreaking research we are funding currently!
Join Elsa Shapiro, PhD and Paul Harmatz, MD for an informative conversation on the unique role of the consulting psychologist, building partnerships within the greater trial ecosystem, and considerations for protocol development.
The annual award recognizes exceptional patient leadership advocacy in the field of lysosomal disease. Presentation will take place Monday, February 8, 2021 at the 17th Annual WORLDSymposium.
The recommended framework would qualify many individuals with MPS and ML to be among the first recipients of a COVID-19 vaccine when it becomes available.
