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We Exist to Cure, Support, & Advocate for MPS & ML

Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.

Learn About MPS and ML

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SPIRIT CONFERENCE:

Finding our SPIRIT – Strength, Purpose, Independence, Resilience, and Initiative Together


Join other adults with MPS and ML, ages 18 and up for the 2024 SPIRIT Conference on Saturday, December 21 from 8:30-3:00pm!

Learn More

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Newly Diagnosed

Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.

Learn & Get Help

Give to the National MPS Society

Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.

Give Today

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Support Those Affected by MPS and ML

Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.

Support

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Research Projects

We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.

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Latest News

Lucas’s Legacy

Lucas was the youngest of four children. From the start, he stood out—not just as the baby of the family, but as the…

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Dr. Matthew Ellinwood to Transition Out of CSO Role in Early Spring 2025

From Terri Klein, President & CEO: Over four years ago, Dr. Matthew Ellinwood came to work side-by-side with…

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Benji: Strong, Confident, and Self-Assured

Benji C. is a strong, confident, self-assured, loud, and determined 8-year-old with MPS I. When Benji was a baby,…

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MPS and ML Occur In

1 in 25,000

Live Births.

Please help us find a cure and help those in need.

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Upcoming Events

Long Beach Race for Rare

Long Beach Race for Rare

Join us for our 2024 Long Beach Race for Rare

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Post Office Cafe’s 33rd Annual Race for MPS

Post Office Cafe’s 33rd Annual Race for MPS

Join us for Post Office Cafe’s 33rd Annual 5k Run & 1k Fun Run In Celebration of Mark and Casey Lessing Hosted…

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2024 MPS Jingle Bell 5K Run and One-Mile Walk

2024 MPS Jingle Bell 5K Run and One-Mile Walk

Join us for our 2024 MPS Jingle Bell 5K Run and One-Mile Walk

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