Support for families
Research for a cure

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Learn About MPS

Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
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Give to the National MPS Society

Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.

Support those affected by MPS and ML

Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.


Million Dollar Bike Ride

Once again, Team MPS will be participating in the Million Dollar Bike Ride on May 20th. This event, hosted by Penn Medicine Orphan Disease Center, is critical for funding research for MPS and ML.  Whether you come to Philadelphia and ride as part of the team or make a donation toward our $50,000 goal, we are counting … Continued

National MPS Society 2018 Research Grants Announced: Letters of Intent Due MAY 7th

The National MPS Society funds research that may lead to treatments for MPS and ML diseases and solicits applications for innovative research projects that involve clinical research, basic research and translational studies. The application for Letter of Intent is now available. Register here to begin the application process. General registration questions can be directed here.  The grant … Continued

Inventiva Announces Positive Outcomes of Biomarker Study

Data confirm highly promising biomarker for MPS VI and limited enzyme replacement therapy (ERT) efficacy in reducing leukoGAGs Inventiva, a biopharmaceutical company developing innovative therapies in MPS, recently announced the positive outcomes of a biomarker study to evaluate intracellular glycosaminoglycans (GAGs) levels in leukocytes as a disease activity biomarker in MPS VI. To read the full … Continued

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