Support for families
Research for a cure

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Learn About MPS

Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
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Give to the National MPS Society

Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.

Support those affected by MPS and ML

Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.


2018 Research Grants Awarded

Dear Friends, Thanks to your hard work and support, the National MPS Society is thrilled to announce the selection of $450,000 in new research grants through our annual research program. This year, the Society will directly fund $550,500 in research, which includes grant awards for both 2018 and the second-year distribution of our 2017 grants.  … Continued

Speaker’s Bureau for 2019

The National MPS Society will be hosting another highly successful Speakers Bureau opportunity and would like to extend an invitation for all members to take part. Let your voice be heard by advocating for MPS and ML on Capitol Hill. Members are cordially invited to join us for a training webinar, in-person training, and speaking … Continued

Pathways Family: Faith Heard

In June of 2015, precious Faith, weighing less than two pounds, came into this world earlier than expected. She spent the first three and half months in the NICU in Nashville, Tennessee. When she was discharged, she was still on oxygen and was soon diagnosed with epilepsy and mild Cerebral Palsy. In February 2017, Faith’s parents, Linda and … Continued

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