We hope to see you at Kennedy Park, CA, on April 27, 2025! Can’t join us in-person? No problem: virtual participants are also welcome.
Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.
Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.
Durham, NC — April 15, 2025 — The National MPS Society welcomes the news that Spruce Biosciences is now leading the…
In 2020, in the quiet hum of a hospital NICU, Lauryn and her husband began a journey no parent ever anticipates….
The Society praises Dr. Marks’ leadership at the FDA and urges continued strong leadership to advance MPS treatment…
Please help us find a cure and help those in need.
Join us for our 2025 Delaware Dash for Rare 5K Run & 1 Mile Walk
The 2025 Napa MPS Race for a Cure is just a week away! 😱
Whether you’re walking, running, or cheering us on, YOU can help drive research, raise awareness, and show the strength of our incredible community.
Not registered yet? There’s still time!
👉 Sign up, start a team, or donate now: tinyurl.com/NapaRace2025
Let’s race toward a cure—together! 🏃♀️💪
#MPSAwareness #NapaRace2025
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💜 Your Story Matters 💜
Has MPS touched your life? Whether you're living with an MPS or ML diagnosis, caring for a loved one, or supporting someone in the community—we want to hear from you.
Your story has the power to connect, uplift, and remind others that they are not alone. Help us build a stronger, more compassionate community by sharing your journey.
📩 Submit your story today: ow.ly/5A5n50VE2KS
#MPSAwareness #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome #MPS #ML
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International MPS Awareness Day is less than a month away—May 15 is coming fast! 💜
We've got some great swag that can help you #ShineForMPS this year! Be sure to order soon to make sure it arrives in time for the big day.
🛍️ MPS Awareness Day merch: ow.ly/ZgTV50VE2xC
Looking for year-round gear? Check out the RARE Aware Shop and our CafePress storefront for shirts, mugs, totes, and more to show your support every day of the year and help us fundraise for research and family support.
🛍️ RARE Aware shop: ow.ly/YwIo50VE2xF
🛍️ Society's CafePress Store: ow.ly/LoLE50VE2xE
#MPSAwarenessDay #GoPurple #MPSAwareness #RAREAware #SupportRare
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2025 MPS Awareness Day. MPS Awareness Day is celebrated annually on May 15. This annual celebration serves as a means to spread awareness of Mucopolysaccharidosis Disorders...0 CommentsComment on Facebook
