MPS and ML Disease Information, Donations, and Support

2019 Annual General Membership Meeting

The National MPS Society hosts an Annual General Membership meeting to provide updates and report back to our membership. We are here to support you! This took place via webinar on Tuesday, November 19, 2019. Click the link below to review the webinar and learn about the work of the Society over the past year.

2019 National MPS Society Annual Fund

The 2019 Annual Fund is underway! Meet Jason Madison, Chair of the 2019 Annual Fund. Jason was diagnosed with MPS II (Hunter Syndrome) at the age of six after his mother watched his uncle suffer similar symptoms. Jason Madison and the National MPS Society hope that your family will make a difference by giving to … Continued

2018 Annual Report

Our annual report outlines key fundraising efforts and work of the committees over the past year. Within the annual report are details of the grants awarded and financial statements. The National MPS Society provides funding for research, support to families, and works to advocate for cures for MPS and ML. Click here to read the … Continued

2019 Events

We have events on each coast and in between to raise money to support families diagnosed with MPS and ML, please join us at a few!

2018 Research Grants Awarded

We’re excited to share all of the groundbreaking research we are funding currently!

Our Fall 2018 Courage Magazine

In the Fall our focus is entirely on you, the hardworking families that make up the society. We honor you for helping us continue our mission every day!

Learn About MPS

Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.

Give to the National MPS Society

Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.

Support those affected by MPS and ML

Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.