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We Exist to Cure, Support, & Advocate for MPS & ML

Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.

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Two children with painted faces at an MPS awareness event

Newly Diagnosed

Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.

Learn & Get Help

37th Annual MPS Conference

Join us on September 28-30th just outside of Washington, D.C.! This conference will feature a day of science and advocacy sessions as we meet with the FDA and NIH, and a second day with family conference sessions, care management tracks, and a SPIRIT conference for our adults with MPS or ML (ages 18+). Make plans to come to Maryland to be a part of the event!

This conference will take place at the Hyatt Regency Bethesda Hotel.

See Details & Register

Hyatt Regency Hotel in Bethesda, MD, for 37th Annual MPS Conference

Give to the National MPS Society

Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.

Ways to Give

Friends pose for a photo at an MPS event
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Support Those Affected by MPS and ML

Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.


Group photo at an MPS awareness event
Scientist with microscope and test tube conducting rare disease research

Research Projects

We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.

Learn More

Latest News

Our Voices Episode 15: Grief, Legacy, and Hope with Dr. Klane White

LAUNCHING JULY 25, 2023 Dr. White speaks with host Jason Madison about his personal connection with MPS, and…

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Our Voices Episode 14: The Journey of a Biochemical Genetic Fellow with Mary Kate LoPiccolo

Dr. Mary Kate LoPiccolo connects with host Jason Madison to discuss medical biochemical genetics and working as a new…

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37th Annual Family & Scientific Conference

You are invited to join us in Bethesda, Maryland for our 37th Annual Family Conference! Located just outside of…

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MPS and ML Occur In

1 in 25,000

Live Births.

Please help us find a cure and help those in need.


Upcoming Events

37th Annual Family & Scientific Conference

37th Annual Family & Scientific Conference

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11th Annual Do It Fore Dan Golf Tournament

11th Annual Do It Fore Dan Golf Tournament

The 11th Annual Do It Fore Dan Golf Tournament will take place on Friday, October 6th, at the Moccasin Run Golf…

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32nd Annual Post Office Café 5K Run and 1K Fun Run

32nd Annual Post Office Café 5K Run and 1K Fun Run

For more information and to register visit our registration page.

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