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We Exist to Cure, Support, & Advocate for MPS & ML

Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.

Learn About MPS and ML

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Newly Diagnosed

Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.

Learn & Get Help

Give to the National MPS Society

Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.

Give Today

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Support Those Affected by MPS and ML

Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.

Support

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Research Projects

We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.

Learn More

Latest News

The Princess of the Family: Sebin’s Story

Sebin, the third of four siblings, has spent nearly her entire life in the hospital, including time in the NICU and…

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Waiting for a Diagnosis for More Than 30 Years: Dana’s Story

“I was misdiagnosed at age seven with Spondyloepiphyseal dysplasia after early signs of skeletal…

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National MPS Society Applauds Renewed Progress for TA-ERT (MPS IIIB) Program Under Spruce Biosciences Leadership

Durham, NC — April 15, 2025 — The National MPS Society welcomes the news that Spruce Biosciences is now leading the…

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MPS and ML Occur In

1 in 25,000

Live Births.

Please help us find a cure and help those in need.

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Upcoming Events

Long Beach Race for Rare

Long Beach Race for Rare

Join us for our 2025 Long Beach Race for Rare

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Delaware Dash for Rare 5K Run & 1 Mile Walk

Delaware Dash for Rare 5K Run & 1 Mile Walk

Join us for our 2025 Delaware Dash for Rare 5K Run & 1 Mile Walk

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