Support for families
Research for a cure

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Learn About MPS

Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
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Give to the National MPS Society

Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.

Support those affected by MPS and ML

Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.


National MPS Society names interim CEO

Terri Klein, National MPS Society’s director of development and operations, has assumed the title of interim CEO. Terri’s long history with the National MPS Society and her dedication to funding MPS and ML research make her the ideal choice to assume the president’s responsibilities. The National MPS Society board of directors expresses gratitude to outgoing … Continued

Society joins Sanfilippo foundations to support gene therapy development

Abeona Therapeutics Inc., a leading clinical-stage biopharmaceutical company focused on developing novel gene and cell therapies for life-threatening rare diseases, announced today a collaborative agreement between nine Sanfilippo foundations to provide approximately $13.85 million of grants to Abeona in installments for the advancement of the Company’s clinical stage gene therapies for Sanfilippo Syndrome Type A … Continued

Join the board of directors

Each year the National MPS Society holds an election for board of director positions due to expire at the end of that year. You must be a current member of the National MPS Society, 21 years of age and a U.S. resident. Employees, officials, agents or representatives of companies engaged in the business of development … Continued

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