We can’t wait to host you in Denver, CO, on August 7-9, 2025, for three days full of learning, support, and connection. Adults 18+ with MPS and ML are also invited to participate in the SPIRIT Conference on Friday, August 8th. We hope to see you there!
Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.
Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.
“Before our sweet son Abe’s MPS I diagnosis in 2024, we had no knowledge of MPS, no idea that we were carriers of…
The National MPS Society is delighted to announce that Sharon King has joined the team as our inaugural Chief…
Sebin, the third of four siblings, has spent nearly her entire life in the hospital, including time in the NICU and…
Please help us find a cure and help those in need.
Thinking about joining us in Denver for the 39th Annual Family & Scientific Conference? Scholarships are available to help families and adults with MPS or ML attend! Apply now: ow.ly/sARb50Wanba
Applications are due by Monday, June 23, 2025, at midnight ET.
#MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
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See next Thursday at 11 AM! We are all done for today! We packed up in a hurry when we saw the weather changing! Great first day, nice to see the familiar faces that come every week year after year!
Every Thursday during her home infusion, Lilah opens up her lemonade stand, serving ice cold, homemade lemonade to raise money and awareness for her rare disease, Mucopolysaccharidosis (MPS).
All money raised at Lilah’s Lemonade stand goes directly to National MPS Society, to fund research for a cure for MPS/ML and fund support programs for families like ours!
Open every Thursday at 11 am through the summer.
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