Watch our video to see how the National MPS Society is changing lives.
This study is available to patients born in one of the following states: California, Indiana, Michigan, Minnesota, New Jersey, New York, North Carolina, Washington The National MPS Society is working with researchers at the University of Washington to improve the precision in newborn screening for MPS syndromes. The researchers would like to obtain the newborn … Continued
The National MPS Society will again publish “Angels Among Us, Remembering Our Loved Ones.” Its purpose is to remember individuals with MPS and ML who have passed away but who remain in our thoughts and hearts. If you would like to write something brief about a special person who had MPS or ML, please complete … Continued
Welcome to the return of printed Courage–this issue is the first to be delivered since Spring of 2016. Looking back, the very first printed edition of Courage was sent in 1985, and members received a newsletter four times a year. Two years ago, a strategic decision was made to transition to an emailed electronic version. … Continued
