Watch our video to see how the National MPS Society is changing lives.
Once again, Team MPS will be participating in the Million Dollar Bike Ride on May 20th. This event, hosted by Penn Medicine Orphan Disease Center, is critical for funding research for MPS and ML. Whether you come to Philadelphia and ride as part of the team or make a donation toward our $50,000 goal, we are counting … Continued
The National MPS Society funds research that may lead to treatments for MPS and ML diseases and solicits applications for innovative research projects that involve clinical research, basic research and translational studies. The application for Letter of Intent is now available. Register here to begin the application process. General registration questions can be directed here. The grant … Continued
Data confirm highly promising biomarker for MPS VI and limited enzyme replacement therapy (ERT) efficacy in reducing leukoGAGs Inventiva, a biopharmaceutical company developing innovative therapies in MPS, recently announced the positive outcomes of a biomarker study to evaluate intracellular glycosaminoglycans (GAGs) levels in leukocytes as a disease activity biomarker in MPS VI. To read the full … Continued
