We can’t wait to host you in Denver, CO, on August 7-9, 2025, for three days full of learning, support, and connection. Adults 18+ with MPS and ML are also invited to participate in the SPIRIT Conference on Friday, August 8th. We hope to see you there!
Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.
Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.
Sebin, the third of four siblings, has spent nearly her entire life in the hospital, including time in the NICU and…
“I was misdiagnosed at age seven with Spondyloepiphyseal dysplasia after early signs of skeletal…
Durham, NC — April 15, 2025 — The National MPS Society welcomes the news that Spruce Biosciences is now leading the…
Please help us find a cure and help those in need.
📅 Mark Your Calendar! Our May Advocacy Meeting is coming soon.
📬 Details will be shared via email. If you’re not sure you’re on our mailing list (or want to be!), reach out to our Communications Director, Amber Adams, at amber@mpssociety.org
#AdvocateForRare #MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
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🎥 Wondering what it looks like to attend a conference with the National MPS Society?
Experience the inspiration, connection, and joy for yourself—watch our video from last year’s unforgettable event, then register NOW to join us for the 39th Annual Family & Scientific Conference in Denver, CO this summer!
🎉 Families, researchers, and advocates are coming together to learn, share, and celebrate. You won’t want to miss it!
📍 Denver, Colorado
📅 August 7-9, 2025
🔗 Register now: ow.ly/hzXp50VWmcF
#mpsfamily2025 #MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
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Carissah (MPS VI) was recently interviewed by her local news station about her journey, and all of the things she's accomplishing despite complications and surgeries brought on by MPS. Check it out: www.newson6.com/story/6827bca8e84a0859cffa33c9/owasso-teen-with-rare-disease-learning-to-drive?ut...
Thank you, Carissah, for sharing your story and helping raise awareness of #MPS! 💜“I just do my daily life.” 💜
At 3'9", 15-year-old Carissah Holland isn’t just learning to drive, she’s earning science fair awards, acing math, and recovering from 15 surgeries along the way.
Born with a rare disease, she’s defying the odds one milestone at a time.
📲 Meet the Owasso teen inspiring her school and community: www.newson6.com/story/6827bca8e84a0859cffa33c9/owasso-teen-with-rare-disease-learning-to-drive?ut...
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