Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
Join us on September 28-30th just outside of Washington, D.C.! This conference will feature a day of science and advocacy sessions as we meet with the FDA and NIH, and a second day with family conference sessions, care management tracks, and a SPIRIT conference for our adults with MPS or ML (ages 18+). Make plans to come to Maryland to be a part of the event!
This conference will take place at the Hyatt Regency Bethesda Hotel.
Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.
LAUNCHING JULY 25, 2023 Dr. White speaks with host Jason Madison about his personal connection with MPS, and…
Dr. Mary Kate LoPiccolo connects with host Jason Madison to discuss medical biochemical genetics and working as a new…
You are invited to join us in Bethesda, Maryland for our 37th Annual Family Conference! Located just outside of…
Please help us find a cure and help those in need.
The 11th Annual Do It Fore Dan Golf Tournament will take place on Friday, October 6th, at the Moccasin Run Golf…
For more information and to register visit our registration page.