Support for families
Research for a cure

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Learn About MPS

Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
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Give to the National MPS Society

Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
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Support those affected by MPS and ML

Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
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News

Rise Up For MPS

RISE UP FOR MPS: A Benefit Concert by Vocal Majority  Please join us on Saturday, March 17th at 7 pm for this concert! Concert Location: Midway ISD Performing Arts Center 800 N. Hewitt Drive, Hewitt, TX Ticket sales: Reserved seating is available from $25 through $100. Buy your tickets and learn more here. All proceeds … Continued

Apply for a continuing education scholarship

Post secondary education scholarships are available for individuals with MPS and ML, their siblings (under age 30), their children and their parents. Scholarships are awarded in increments of $1,000 for full-time students, $500 for part-time students, and the Jeff Bardsley CED scholarship awards $5,000. The application deadline is March 15. Applications are only accepted using … Continued

Shire’s MPS II clinical trial fails to meet endpoints

Company will review data; analyze positive trends beyond initial results Shire announced today that top-line data from its phase II/III clinical trial for MPS II did not meet primary or key secondary endpoints. The endpoints looked at General Conceptual Ability (GCA) and Adaptive Behavior Composite (ABC) scores in Hunter syndrome patients. The National MPS Society … Continued

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