The Annual Fund helps the Society provide funding for several key programs like Family Support, Pathways, and more.
Join us in Orlando, FL, from December 19th to the 21st. You can click the register now button to visit our conference registration site and learn more. We look forward to celebrating the 50th anniversary of the National MPS Society with MPS/ML friends and family from across the nation!
Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.
Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.
Lucas was the youngest of four children. From the start, he stood out—not just as the baby of the family, but as the…
From Terri Klein, President & CEO: Over four years ago, Dr. Matthew Ellinwood came to work side-by-side with…
Benji C. is a strong, confident, self-assured, loud, and determined 8-year-old with MPS I. When Benji was a baby,…
Please help us find a cure and help those in need.
Join us for Post Office Cafe’s 33rd Annual 5k Run & 1k Fun Run In Celebration of Mark and Casey Lessing Hosted…
Join us for our 2024 MPS Jingle Bell 5K Run and One-Mile Walk
Make sure to join us this weekend for the 3rd Annual Long Beach Race for Rare! Not able to join us in-person? You can participate virtually! Learn more and register today: nationalmpssociety.redpodium.com/2024-long-beach-race-for-rare
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Phoenix, you were amazing! 🌵💛
Thank you to everyone who attended our Crossing Paths event in Phoenix last weekend. We had such a great time meeting you all! Where should we go next? 🤔
#MPS #ML #raredisease #hurlersyndrome #HunterSyndrome #sanfilippo #morquiosyndrome #MaroteauxLamySyndrome #slysyndrome #hyaluronidasesyndrome
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MPS & ML families in the Southeastern US-- we have created a form for those who have a place for evacuees to go, or are willing to open up their homes for other families: bit.ly/3XZVfJM
If you are impacted by Hurricane Helene or evacuating for Hurricane Milton, please email Leslie Urdaneta at leslie@mpssociety.org.
Thank you all for your support. Our hearts are with those who are still feeling the effects of Helene, and those who are anticipating the effects of incoming hurricane Milton ❤️🩹
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