Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
Join us as we celebrate the 50th anniversary of the National MPS Society at the 38th Annual Family & Scientific Conference in Orlando, Florida! Save the date for this fantastic event: December 19 – 21, 2024.
Registration and hotel details will be announced in early 2024.
Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.
The National MPS Society proudly supports siblings of those diagnosed with MPS or ML by offering connections,…
Dr. White speaks with host Jason Madison about his personal connection with MPS, and navigating life and career with…
Dr. Mary Kate LoPiccolo connects with host Jason Madison to discuss medical biochemical genetics and working as a new…
Please help us find a cure and help those in need.
In honor of National Family Caregivers Month, our friends at NORD invite you to join a community conversation around caregiving. Hear directly from fellow rare disease caregivers about their different journeys, with time for resource-sharing, connection, and Q&A.
Caregivers have an important role in the rare disease community. This month is a time to honor and recognize the impact you have on your loved ones’ health and well-being. Rare disease very often impacts the entire family unit and parents, siblings, and other relatives find themselves stepping into caregiving roles.
Register for the Community Conversation at ow.ly/KwIL50QbCv9
#MPSML #CureSupportAdvocate #HopeForMPS #Caregiving #MentalHealth #Resources #RareDisease #Parenting #NationalMPSSociety
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Haven't ma#GivingTuesdayesday contribution yet? It's not too late, and one of the easiest ways to give is via text!
Text 'Courage' to 41444, and the automated system will walk you through all the details.
Or visit our Facebook fundraiser at www.facebook.com/donate#MPSML2#NationalMPSSociety #MPSSocietyS#givet#donateo#share##CureSupportAdvocate##blackfridayd#CyberMondayk#dogood##MPSAwarenessD#hopeformpswareness #HopeForMPS
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Happy #GivingTuesday! Let's all take a moment to give back and celebrate the gift of giving to and for our MPS and ML family. Today, we're remembering the true spirit of the season - community, compassion, and kindness. It's the perfect time to show our support and make a difference in s#livegenerouslyife. #LiveGenerously 🎁💝
Please remember there are many ways to give. Even if you can't contribute financially, consider creating a Facebook/Instagram fundraiser, sharing our posts to raise awareness, telling your story through a Courage page on our website, or simply wearing purple and telling your story to those you come across. We are grate#MPSMLr#NationalMPSSocietyM#MPSSocietyn#giveS#donate##sharei#CureSupportAdvocateh#blackfridayp#CyberMonday##dogoodi#hopeformpsonday #DoGood #HopeForMPS
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