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Learn About MPS

Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
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Give to the National MPS Society

Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
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Support those affected by MPS and ML

Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
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News

Newborn Screening Biomarkers Study

This study is available to patients born in one of the following states: California, Indiana, Michigan, Minnesota, New Jersey, New York, North Carolina, Washington The National MPS Society is working with researchers at the University of Washington to improve the precision in newborn screening for MPS syndromes. The researchers would like to obtain the newborn … Continued

Angels Among Us

The National MPS Society will again publish “Angels Among Us, Remembering Our Loved Ones.” Its purpose is to remember individuals with MPS and ML who have passed away but who remain in our thoughts and hearts. If you would like to write something brief about a special person who had MPS or ML, please complete … Continued

The printed Courage magazine is back!

Welcome to the return of printed Courage–this issue is the first to be delivered since Spring of 2016. Looking back, the very first printed edition of Courage was sent in 1985, and members received a newsletter four times a year. Two years ago, a strategic decision was made to transition to an emailed electronic version. … Continued

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Upcoming Events

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