2019 Events
We have events on each coast and in between to raise money to support families diagnosed with MPS and ML, please join us at a few!
2018 Research Grants Awarded
We’re excited to share all of the groundbreaking research we are funding currently!
Our Fall 2018 Courage Magazine
In the Fall our focus is entirely on you, the hardworking families that make up the society. We honor you for helping us continue our mission every day!
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Support those affected by MPS and ML
Research
News
#MPSAwareness Purple Bird Contest
Families across the country received purple birds to help raise awareness! These birds traveled around the world to spread the word about MPS. Families and individuals with MPS submitted pictures of the adventures of their purple birds. These were shared on Facebook and voted on to determine the winner of the contest for this year! … Continued
International MPS Awareness Day
May is a very special month for the National MPS Society. The Society and its members celebrate International MPS Awareness Day on May 15 and on that day we: Honor everyone in the MPS and ML community Recognize all the children and adults diagnosed with MPS and ML Think about the loved ones we have … Continued
United States Clinical Trial News
The National MPS Society recognizes research and clinical trials for MPS and ML exist around the world. We are pleased to share some ongoing clinical trials, with current enrollment, listed below. For more information about ongoing clinical trials, please visit: www.clinicaltrials.gov. Please contact Terri Klein for any additional questions. Hurler Syndrome ( MPS I … Continued
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