MPS and ML Disease Information, Donations, and Support

35th Annual Family Conference

Mark your calendars to join us June 18-20 and 26-27 for our 35th Annual Family Conference! The conference will be held virtually, with sessions taking place across four days. Our theme, Connected Together, will focus on similarities within syndrome types and collaboration.

COVID-19 and MPS/ML: Information and Support

New Frequently Asked Questions on COVID-19, vaccine distribution, and the impacts on the rare disease community. Click through for some common answers from our CSO and Scientific Advisory Board.

Society Raises a Historic Amount through the 2020 Annual Fund!

With your help, and the contributions of our co-chairs, Dr. Matthew Ellinwood and Patricia Espinal, our 2020 Annual Fund raised over $290,000!

Learn About MPS

Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.

Give to the National MPS Society

Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.

Support those affected by MPS and ML

Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.