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Register for the 2024 Raleigh Run for Rare

5K Run and 1 Mile Memorial Walk, Saturday, March 23, 2024

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We Exist to Cure, Support, & Advocate for MPS & ML

Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.

Learn About MPS and ML

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Two children with painted faces at an MPS awareness event

Newly Diagnosed

Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.

Learn & Get Help

38th Annual Family & Scientific Conference

Join us as we celebrate the 50th anniversary of the National MPS Society at the 38th Annual Family & Scientific Conference in Orlando, Florida! Save the date for this fantastic event: December 19 – 21, 2024.

Registration and hotel details will be announced in early 2024.

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Give to the National MPS Society

Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.

Give Today

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Support Those Affected by MPS and ML

Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.


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Scientist with microscope and test tube conducting rare disease research

Research Projects

We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.

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Latest News

Resources for Siblings

The National MPS Society proudly supports siblings of those diagnosed with MPS or ML by offering connections,…

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Our Voices Episode 15: Grief, Legacy, and Hope with Dr. Klane White

Dr. White speaks with host Jason Madison about his personal connection with MPS, and navigating life and career with…

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Our Voices Episode 14: The Journey of a Biochemical Genetic Fellow with Mary Kate LoPiccolo

Dr. Mary Kate LoPiccolo connects with host Jason Madison to discuss medical biochemical genetics and working as a new…

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MPS and ML Occur In

1 in 25,000

Live Births.

Please help us find a cure and help those in need.


Upcoming Events

Raleigh Run for Rare

Raleigh Run for Rare

Join us for Raleigh Run for Rare 2024

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Napa Race for a Cure

Napa Race for a Cure

Join us for Napa Race for a Cure 2024

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Keller’s 5k for MPS

Keller’s 5k for MPS

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