News

Newborn Screening Study

Now recruiting patients born in: California, Michigan, New Jersey, New York This study is also recruiting any patients in any state who have privately banked cord blood and would provide a single-drop sample. Please contact Leslie Urdaneta directly if interested. This study is available to patients with MPS II, III, IV, VI, and VII born … Continued

34th Annual Family Conference – A Virtual Event

Registration now open!

On September 11-12th, we will be hosting the 34th Annual Family Conference, virtually! This one-of-a-kind event will include many components of our traditional conferences, plus unique interactive experiences in a robust virtual environment.

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