Join us in Orlando, FL, from December 19th to the 21st. You can click the register now button to visit our conference registration site and learn more. We look forward to celebrating the 50th anniversary of the National MPS Society with MPS/ML friends and family from across the nation!
The Annual Fund helps the Society provide funding for several key programs like Family Support, Pathways, and more.
Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.
Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.
We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual Family &…
We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual Family &…
In the early days of his career, a young scientist named Emil Kakkis found himself deep in the world of academic…
Please help us find a cure and help those in need.
Join us for our 2024 MPS Jingle Bell 5K Run and One-Mile Walk
Don't forget to register for the winter #ARC Social Gathering on Zoom tomorrow! 🥰🌲Don't forget: teens or adults with MPS or ML (16+) can register to attend the Adult Resources Committee's winter Zoom gathering, where there will be games, prizes, and tons of fun! ⛄❄️
Register now: ow.ly/yaKA50U1OFY
#MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
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Are you attending the 38th Annual Family & Scientific Conference? Do you have a hidden talent? We're seeking acts for our conference talent show! Fill out our form if you're interested: ow.ly/CaLy50UkoH1
#NMPSSC24 #MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
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REMINDER: Rifton, in celebration of the National MPS Society's 50th anniversary, is donating any single piece of equipment in their catalog, customized completely for someone diagnosed with MPS or ML and their unique needs! 🥳
Members of the Society can submit their application anytime before December 9, 2024, to be entered into a drawing for a chance to receive this incredible gift. Make sure to read the directions closely, and complete the application fully: ow.ly/G95k50U2fVA
Thank you, Rifton! 💜
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