We can’t wait to host you in Denver, CO, on August 7-9, 2025, for three days full of learning, support, and connection. Adults 18+ with MPS and ML are also invited to participate in the SPIRIT Conference on Friday, August 8th. We hope to see you there!
Join us for an unforgettable evening in Boston, MA, on October 11, 2025, as we commemorate a remarkable milestone – 50 years of hope, progress, and support – at the National MPS Society’s 50th Anniversary Masquerade Gala!
Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.
Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.
The National MPS Society is proud to offer a Media Toolkit—a resource designed to help you raise your voice, share…
“Before our sweet son Abe’s MPS I diagnosis in 2024, we had no knowledge of MPS, no idea that we were carriers of…
The National MPS Society is delighted to announce that Sharon King has joined the team as our inaugural Chief…
Please help us find a cure and help those in need.
Join us for our 2025 Delaware Dash for Rare 5K Run & 1 Mile Walk
Join us for the 13th Annual Do It ‘Fore’ Dan Golf Tournament Hosted by Ray and Amy Miller
There is one day left to register for Rare Across America! This event brings rare disease advocates face-to-face (or screen-to-screen!) with lawmakers to share personal stories and policy priorities. Whether you're new to advocacy or a seasoned pro, your voice matters!
🔗 Sign up here: hubs.ly/Q03wcD4R0
1 CommentsComment on Facebook
📢 Happening tomorrow! What does the One Big Beautiful Bill Act (H.R.1) mean for rare diseases?
Join us for a critical RDLA Community Webinar to break down the final Budget Reconciliation Bill, how it impacts the rare disease space, and what’s next for advocacy.
🗓️ Thursday, June 10
🕑 2:00–3:00pm ET
🔗 Register now: hubs.li/Q03wtyPb0
2 CommentsComment on Facebook
📣 We’re officially ONE MONTH away from the National MPS Society’s 39th Annual Family & Scientific Conference in Denver! 🎉
Still thinking about joining us? There’s still time to register: ow.ly/WFBw50Wn06k
Whether it’s your first time or your fifth, this unforgettable event brings families, researchers, and advocates together in powerful ways. 💜 Not sure what to expect? Take a look at this walk-through of our main hall from last year’s conference, courtesy of Jason — and start getting excited for what’s ahead! ⬇️
#MPSFamily2025 #MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
3 CommentsComment on Facebook
