MPS and ML Disease Information, Donations, and Support

Ride for a Cause, Double the Donations!

Come Ride with Team MPS on June 8 in Philadelphia
Every Donation up to $30,000 will be matched!

Dare to be Different Gala in D.C.

Join us for our “Dare to be Different” Gala in Washington, D.C. to celebrate our 45th anniversary.

2019 Events

We have events on each coast and in between to raise money to support families diagnosed with MPS and ML, please join us at a few!

2018 Research Grants Awarded

We’re excited to share all of the groundbreaking research we are funding currently!

Our Fall 2018 Courage Magazine

In the Fall our focus is entirely on you, the hardworking families that make up the society. We honor you for helping us continue our mission every day!

Learn About MPS

Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.

Give to the National MPS Society

Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.

Support those affected by MPS and ML

Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.

Research

Learn about our recent research grants and research updates.

News

Mon Apr 29

International MPS Awareness Day

May is a very special month for the National MPS Society. The Society and its members celebrate International MPS Awareness Day on May 15 and on that day we: Honor everyone in the MPS and ML community Recognize all the children and adults diagnosed with MPS and ML Think about the loved ones we have … Continued

Thu Apr 25

United States Clinical Trial News

The National MPS Society recognizes research and clinical trials for MPS and ML exist around the world. We are pleased to share some ongoing clinical trials, with current enrollment, listed below. For more information about ongoing clinical trials, please visit: www.clinicaltrials.gov. Please contact Terri Klein for any additional questions. Hurler Syndrome ( MPS I … Continued

Thu Apr 25

Research Grants Program 2019

The Research Grant Program for 2019 is officially open. In 2019 the Society will continue funding research with the goal of finding treatments and cures for MPS and ML. The Letter of Intent application is now available for innovative research projects that involve clinical research, basic research, and translational studies. Register here to begin the application process. General registration … Continued

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