Support for families
Research for a cure

Watch our video to see how the National MPS Society is changing lives.

Learn About MPS

Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
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Give to the National MPS Society

Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.

Support those affected by MPS and ML

Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.


Million Dollar Bike Ride

The Penn Medicine Orphan Disease Center (ODC) will be hosting the 5th Annual Philadelphia‐based bicycle ride on Sunday, May 20, 2018 to raise much-needed funds for research in rare diseases.  Team MPS is registered for participation in this event, and registration for cyclists will be announced at a later date. One major announcement to note is … Continued

Board of Directors Election Results

The results are in!  Congratulations to our new board members and those re-elected into their role as Board of Director of the National MPS Society for 2018-2019. We would like to thank all of our board members for their continued commitment to excellence and persistence in this fight to find treatments and cures for all those … Continued

Financial help available for MPS VII patients

The Assistance Fund, an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs, has launched a financial support initiative for MPS VII patients and their families. The program offers funds that can be used for copayments, health insurance premiums and incidental medical expenses. “Individuals with MPS VII face a … Continued

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Upcoming Events

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