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We apologize for the difficulty accessing the membership renewal link. For some reason, some of our existing members did not transfer over to our new website correctly, and we have to ask you to please renew by entering your full information as a “new” member. This will ensure it remains in our website system correctly and will auto-populate for your updates in the future.

National MPS Society Membership

National MPS Society membership is free to all those affected by MPS and ML, their families and their friends. Corporate memberships are available at a cost for businesses and organizations.

MPS Society members in front of an informational display
Family of four in a park for the MPS 5k race

Become a Member

Your membership brings us another step closer to achieving our goal of ultimately curing MPS and ML. Together we work to provide support and information to families affected with MPS and ML; to increase public and professional awareness of MPS and ML; and most importantly – to further the vital research that adds quality to all our lives.

Become a Member

Membership Benefits

New member welcome package, including educational materials and resource guides

Connection to Pathways Program for newly diagnosed families

Access to publications and educational materials, including bi-monthly electronic Courage newsletter

Access to online membership directory

Access to Courage Pages – Personalized awareness and/or fundraising webpage

Eligibility for financial assistance grants and scholarships, such as: family assistance program for durable medical goods; conference travel scholarships; continuing education scholarships; medical travel assistance program; Extraordinary Experience program; journey assistance and regional social gathering funding

Complimentary annual family conference registration fees for individuals with MPS or ML and discounted registration for all members

Networking opportunities with researchers, physicians, families, board of directors and staff at the annual family conference

Bereavement programs, including Angels Among Us memorial publication, biannual Celebrating Your Cherished Life Experience conference and the White Rose program

Volunteer opportunities with board committee projects

Training and resources to become an effective advocate at state and federal level

Assistance with fundraising efforts from the development director and fundraising committee, including access to online fundraising toolkit

Voting privileges for the annual board of directors election

Access to our physicians database – a searchable resource to find physicians who have experience with MPS and ML

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Connecting with other MPS and ML families

Several families have volunteered to publicize their personal e-mail addresses for private conversations with others who want to learn more about raising children with MPS and ML. If you would like to add your name to this list, contact us.

Volunteers smiling at an MPS awareness event