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Meet Our Staff

Board of Directors

Lisa Todd

Chairman
(MPS II Parent)
Albuquerque, NM
lisa.todd@mpssociety.org

Lisa Todd lives in Albuquerque, NM, with her husband, Jerry, and their three sons—Jack (MPS II), Jake, and Jaden. Lisa supports the Society by serving on the board, hosting the Keep Hope Alive fundraiser, and serving on the Fundraising and Governance committees. Lisa is a CPA and specializes in not-for-profit entities. Through her professional role, she provides training to many types of non-profits on a variety of governance and financial issues. Lisa has been a member of the Society since Jack was first diagnosed with MPS in June 2011 and has been a board member since January 2012

Steve Holland

Vice Chairman
(MPS I Parent)
River Oaks, TX
steve.holland@mpssociety.org

Steve Holland, CPA, is the proud father of Spencer, Madison and Laynie, who were diagnosed with attenuated MPS I in 1994. The Hollands live in Texas, where they host a successful MPS fundraiser annually. Steve has served on the Society’s board since 1998, formerly serving as Chairman and Treasurer and currently serving as Vice-Chairman. He chairs the Education/ Publicity Committee and the Pathways Committee and is a frequent speaker on MPS and rare disease topics.

Lynn Hopkins

Treasurer
(MPS I Parent)
lynn.hopkins@mpssociety.org

Mother of Christopher and Michelle (MPS I). Lynn started her career in public accounting at KPMG, has served as a Finance Executive of publicly-traded banks for over 25 years, and is currently the CFO of Banc of California. She has been an active member of the Society for 14 years and is currently the Society’s Treasurer. She has participated in MPS Society family conferences, hosted fundraisers, and served as the 2014 Annual Fund Chairperson raising over $175,000.

Maureen Cote

Secretary
(MPS VI Aunt)
Anna Maria, FL
maureen.cote@mpssociety.org

Maureen comes to the Board upon learning that her two beloved great-nieces were diagnosed with MPS VI. The role that the Society played to assist her family, as they navigated the diagnosis, forever changed Maureen and provided her family with the much needed support that only the Society could offer. Her desire to help the Society and raise awareness and support for MPS and ML has become a driving force in her life.

Nicole Bennett

(MPS II Sibling)
Thousand Oaks, CA
nicole.bennett@mpssociety.org

Nicole is the sister of Jack Frye (MPS II). Nicole and her family have been members for over 10 years. She has attended many Family Conferences and significantly assisted us with the childcare program. Nicole and her family through their Jack Pack Team have raised over $100,000. Nicole’s vision for the society is to continue to create a safe space and help create change that will impact the lives of those with MPS and ML. We look forward to working with Nicole and addressing key issues that are important to our members.

Stephanie Cozine

(MPS I Parent)
New Castle, DE
stephanie.cozine@mpssociety.org

Stephanie Cozine is the mother of Ethan and Claire Cozine. Ethan has MPS I Hurler Syndrome and is treated at the Children’s Hospital of Philadelphia and Nemours AI Dupont. She is a member of the advocacy committee and education/publicity committee. Stephanie has experience as a hospital pharmacist and manager. She currently stays at home with her children and volunteers for rare disease organizations. She has a passion for advocacy and newborn screening.

Tamara Cullere

(MPS I Parent)
New Milford, NJ
tamara.cullere@mpssociety.org

Tamara Cullere holds master’s degrees in education and special education and has been teaching for 16 years. She is the mother of Benji (MPS I, diagnosed in 2017), Tyler, and Lucas. Tamara volunteers on the family support, advocacy, and education/publicity committees, and brings a wealth of knowledge, connection, and desire to create a strong community network within our members. She has recently published her first book, Emotions of a Super Sibling.

Patricia Espinal

(MPS VI)
Napa, CA
patricia.espinal@mpssociety.org

Patricia Espinal has MPS VI and lives in Napa, California. She has been a member of the Society since 2004. Since then, she has run her own Foundation, MPS6Cess, and has attended numerous Society events. Patricia’s goals while serving the Society include growing international friendships and bridging cultural barriers with the Latino population. In addition, she hopes to provide input into our newly forming diversity and inclusion programs at the Society. Patricia’s oldest brother Harold passed away from MPS VI, and this loss has motivated her to give back.

Amy Holland

(MPS I Parent)
River Oaks, TX
amy.holland@mpssociety.org

Amy Holland is the mom of three kids with MPS I. She is an engaging public speaker and brings her sense of humor and creativity to the board. She serves on the family support and fundraising committees and works on conference planning and children’s programming.

Scott Hopkins

(MPS I Parent)
Long Beach, CA
scott.hopkins@mpssociety.org

Native of Southern California and father of Christopher and Michelle (MPS I), Scott has over 20 years experience in finance and an MBA from Pepperdine University that has prepared him to serve the MPS Society. Scott has been an active member of the MPS Society for over 13 years and was first connected with the Society after the diagnosis of his daughter in 2005. He has attended many MPS family conferences and hosted multiple fundraisers. Scott believes that a strong network connecting members is the key to moving the Society forward.

Jason Madison

(MPS II)

Allentown, PA
jason.madison@mpssociety.org

Jason Madison has MPS II and lives in Allentown, Pennsylvania. Jason has been a member of the Society for over 25 years. This will be Jason’s second time joining the Board of Directors, and we are excited he can bring his skills and knowledge to our Families and Team. Jason has been active in the Adult Resource Committee and is one of the Co-hosts of the Society podcast, Our Voices. Jason has worked in graphic arts and written our podcasts’ music. Jason has led his advocacy efforts with a strong voice that has brought the adult patient community together with reassurance and support.

Stacey Montgomery

(MPS IIIB)
Cedar Rapids, IA
stacey.montgomery@mpssociety.org

Stacey Montgomery is the mother of Lucas, MPS IIIB (1997 – 2018), and lives in Cedar Rapids, Iowa. Stacey has been a member of the Society since 2006 and has hosted many fundraising events, including the Laps for Lucas. Her family has attended multiple conferences. She also sells Lucas Gear to help struggling families in their region. Her daughters have also presented at our Family Conference, inspiring other young folks to raise funds for critical programs. Stacey wants to share the knowledge she has gained over the years caring for Lucas with physicians, therapies, and medicines with other families. She hopes to raise awareness for MPS and work in our diversity and inclusion outreach programs at the Society.

Austin Noll

(MPS III Parent)
Middleton, WI
austin.noll@mpssociety.org

Austin Noll currently serves as the EVP, CCO of Natus Medical. He has over 30 years’ experience in the medical device industry, previously serving as President & CEO of Simpirica Spine and NeoGuide Systems. He also held numerous positions at Medtronic, serving as VP, GM of the Powered Surgical Solutions and Neurosurgery businesses. He received a Bachelor of Science degree in Business Administration from Miami University and a Master of Business Administration degree from the University of Michigan.

Sheri Wise

(MPS IV)
Del City, OK
sheri.wise@mpssociety.org

Sheri Wise grew up on a farm in north central Oklahoma with her parents and 2 younger sisters. She was diagnosed with MPS IV when she was 6. She loves being on the Board of Directors and enjoys doing things to help the MPS Society. She has been a strong advocate for the Society, making multiple trips to Washington D.C., and loves to promote the Society’s fundraising initiatives.

Lisa Todd

Chairman
(MPS II Parent)
Albuquerque, NM
lisa.todd@mpssociety.org

Lisa Todd lives in Albuquerque, NM, with her husband, Jerry, and their three sons—Jack…

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Steve Holland

Vice Chairman
(MPS I Parent)
River Oaks, TX
steve.holland@mpssociety.org

Steve Holland, CPA, is the proud father of Spencer, Madison and Laynie, who…

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Lynn Hopkins

Treasurer
(MPS I Parent)
lynn.hopkins@mpssociety.org

Mother of Christopher and Michelle (MPS I). Lynn started her career in public accounting at KPMG, has served as a Finance…

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Maureen Cote

Secretary
(MPS VI Aunt)
Anna Maria, FL
maureen.cote@mpssociety.org

Maureen comes to the Board upon learning that her two beloved great-nieces were…

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Nicole Bennett

(MPS II Sibling)
Thousand Oaks, CA
nicole.bennett@mpssociety.org

Nicole is the sister of Jack Frye (MPS II). Nicole and her family have been members for over 10 years. She…

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Stephanie Cozine

(MPS I Parent)
New Castle, DE
stephanie.cozine@mpssociety.org

Stephanie Cozine is the mother of Ethan and Claire Cozine. Ethan has MPS I Hurler Syndrome and is treated at…

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Tamara Cullere

(MPS I Parent)
New Milford, NJ
tamara.cullere@mpssociety.org

Tamara Cullere holds master’s degrees in education and special education and has been teaching for 16…

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Patricia Espinal

(MPS VI)
Napa, CA
patricia.espinal@mpssociety.org

Patricia Espinal has MPS VI and lives in Napa, California. She has been a member of the Society since 2004. Since then,…

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Amy Holland

(MPS I Parent)
River Oaks, TX
amy.holland@mpssociety.org

Amy Holland is the mom of three kids with MPS I. She is an engaging public speaker and brings her sense of humor and…

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Scott Hopkins

(MPS I Parent)
Long Beach, CA
scott.hopkins@mpssociety.org

Native of Southern California and father of Christopher and Michelle (MPS I), Scott has over 20 years experience…

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Mercedes Johnson

(ML II)
Lewisville, TX
mercedes.johnson@mpssociety.org

Carl Kapes

(MPS IIIA Parent)
Wilmington, DE
carl.kapes@mpssociety.org

Jason Madison

(MPS II) Allentown, PA
jason.madison@mpssociety.org

Jason Madison has MPS II and lives in Allentown, Pennsylvania. Jason has been a member of the Society for over 25 years. This…

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Stacey Montgomery

(MPS IIIB)
Cedar Rapids, IA
stacey.montgomery@mpssociety.org

Stacey Montgomery is the mother of Lucas, MPS IIIB (1997 – 2018), and lives in Cedar Rapids, Iowa. Stacey…

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Austin Noll

(MPS III Parent)
Middleton, WI
austin.noll@mpssociety.org

Austin Noll currently serves as the EVP, CCO of Natus Medical. He has over 30 years’ experience in the medical device…

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Sheri Wise

(MPS IV)
Del City, OK
sheri.wise@mpssociety.org

Sheri Wise grew up on a farm in north central Oklahoma with her parents and 2 younger sisters. She was diagnosed with MPS IV…

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Staff

Scientific Advisory Board

Kim Hemsley, PhD – Chair

Allison Bradbury, PhD

Barbara Burton, MD

Alessandra d’Azzo

Robert Desnick, MD, PhD

Patricia Dickson, MD

Julie Eisengart, PhD, LP – Assoc. Chair & Chair Designate

Amy Gaviglio, MS, CGC

Paul Harmatz, MD

Mark Haskins, VMD, PhD

William Mackenzie, MD

Adriana M. Montaño, Phd

Joseph Muenzer, MD

Matthew Pendlton, PhD

Beth A. Pletcher, MD

Lynda E. Polgreen, MS, MD

Mark S. Sands, Phd

Edward H. Schuchman, PhD

William S. Sly, MD

Cologera Simonaro, PhD

Lachlan Smith, PhD

Richard Steet, PhD

Steven U. Walkley, DVM, PhD

Ray Wang, MD

Klane K White, MD

Chester B. Whitley, PhD, MD

John H. Wolfe, PhD