Please join our family as we host the 1st Do It ‘Fore’ Dan Golf Tournament to raise money for medical research seeking cures and treatments for the devastating disease, MPS (Mucopolysaccharidoses). This condition has affected many lives in the tri-state area and around the United States and sadly has taken the lives of many as well. There are seven different types of MPS and our son Dan, has MPS type II or Hunter Syndrome. He will be 16 years old in September and fights and struggles with the debilitating effects that this progressive and degenerative disease has on his body. It is our hope to raise both awareness and funds for this terrible disease.
MPS is a genetic illness which causes damage to virtually every cell in the body resulting in progressive deterioration and eventually death. It is a terminal disease with no cure. The average lifespan of a child with MPS is the teen years. Although the disease is rare, there are a number of families in the tri-state area that we know who have an affected love one or who have lost a loved one. The National MPS Society is a nonprofit 501c3 organization dedicated to improving the lives of children and families who are impacted by MPS while researching for cures. Promising treatment and therapies are just around the corner. Money is needed to continue the fight to find cures. For more information about MPS and the National MPS Society, please visit www.mpssociety.org.
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