Thanks for visiting CureRyder! Please help me with my fundraising by contributing to this great cause.
My name is Ryder, and I am 3 years old. I have Sanfilippo Syndrome. I was diagnosed April 12, 2016. My parents will never forget that day because they were told I have a rare fatal genetic disease. The doctor told them to take me and love me while they can because there is currently no cure or treatment for this devastating disease. The disease will steal my milestones, hearing, vision, and my mind before taking my life. The disease however will not get my HOPE for a cure. That is why I am asking you today for a donation! I do not want to suffer an unimaginable painful death. You may also want to visit my Facebook page.
The mission of the National MPS Society is to fund research and provide support for families affected by MPS and related diseases.
Sanfilippo Syndrome Type B is a rare, fatal childhood disease often compared to childhood Alzheimer’s. It slowly steals a child’s ability to talk, walk, eat, and eventually, to live. There has never been an approved treatment. Until now. A groundbreaking therapy is emerging, and families across the country are linking arms to help bring it forward. Together, we have the opportunity to make history for Sanfilippo B and open access to treatment for the first time ever. To move this therapy forward, $6 million is needed, with $3.8 million required by Thanksgiving to take the next critical step. This is our moment. We refuse to miss it.
Please help our family and support the National MPS Society. Every donation will make a difference in the lives of those affected by MPS and related diseases. Please visit www.mpssociety.org for more information.
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