This courage page is for my son, Easton. Easton has encountered many obstacles since his birth on January 6th, 2017. He spent the first month of his life in the NICU, half of that time on a ventilator. He has since then had many procedures, tests, surgeries, hospitalizations, etc. On November 8th, 2017 when Easton was ten months old, we got the unfortunate diagnosis of MPS ll-Hunter Syndrome after his collaborative care team came together to find a diagnosis.
When Easton was born, his first 31 days were spent in the NICU. Half of his NICU stay was spent on a ventilator. Since coming home, Easton has had 8 hospitalizations, 4 surgeries, numerous x-rays, tests and procedures, and has a diagnosis list just about a mile long.
On November 2017, Easton was diagnosed with a rare disease known as Hunter Syndrome-MPS ll. Finally, after 10 months of having no idea what was wrong with Easton medically, we had a diagnosis. But this is not a diagnosis that any family would want.
Since Easton’s diagnosis with MPS II, he has had a g-tube placed to protect his lungs from aspiration events and subsequent pneumonias. Easton also had a port placed for his weekly enzyme infusion treatments.
We ask for you to spread awareness for our family, for our sweet and happy baby Easton.
You can donate on this page for research, family programs, etc. to the MPS Society. If you would like to donate personally to our family, you can donate here: https://www.gofundme.com/4j6x7t-team-eastonismyhero
We truly appreciate all the support, prayers, and donations ❤️
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