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Press Releases

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  • Topic: News
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26 Mar, 2025

    The Invaluable Gift of Hope: Raelin’s Story

    "In 2018, our family welcomed our youngest daughter, Raelin, into the world. From the moment she was born,...

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    17 Mar, 2025

      The Wain Family’s Journey

      The Wain family’s journey with MPS began in 1987 when their firstborn, Matthew, was diagnosed with MPS I....

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      17 Mar, 2025

        Spring 2025 Courage

        Click here to read the latest edition of Courage online, or click here to download a PDF copy.

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        5 Feb, 2025

          National MPS Society Appoints Dr. Scott Loiler as Chief Scientific Officer

          DURHAM, N.C. (February 5, 2025) – The National MPS Society is pleased to announce the appointment of Dr....

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          27 Jan, 2025

            A Mother’s Relentless Fight: Jacob’s Journey with MPS IIIB

            For most of his 10 years, Jacob has been a puzzle. Born prematurely, he faced challenges from the start....

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            22 Nov, 2024

            Free Activities at Disney to Boost Your 38th Annual Family & Scientific Conference Experience!

            We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual Family...

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            15 Nov, 2024

            Transportation at Walt Disney World

            We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual...

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            7 Nov, 2024

            Researcher and Advocate: Dr. Kakkis

            In the early days of his career, a young scientist named Emil Kakkis found himself deep in the world of...

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