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Press Releases

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23 Oct, 2025

    Courage – Fall 2025 Edition Now Available

    The Fall 2025 edition of our Courage magazine is now available online. Click here to view it, or click here...

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    23 Oct, 2025

      Rarest in the Family: Juliette (MPS III)

      When Jemma and Joey met as college students at Kansas State University, they could never have imagined how...

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      8 Oct, 2025

        Small but Mighty: Kashton (MPS II)

        On any given afternoon in Oklahoma, you can expect to find two-year-old Kashton busy doing the things he...

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        22 Sep, 2025

          A Long Road: Kelley’s Journey to an MPS I Diagnosis

          Kelley grew up in Jersey City, where her childhood was shaped by both anxiety and resilience. She remembers...

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          11 Sep, 2025

            Celebrating Progress and Demanding More: the National MPS Society Celebrates Newborn Screening Month

            September is National Newborn Screening Awareness Month—a time to reflect on the life-saving power of early...

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            24 Jun, 2025

            Media Toolkit

            The National MPS Society is proud to offer a Media Toolkit—a resource designed to help you raise your voice,...

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            10 Jun, 2025

              Thriving with Gene Therapy: Abe’s Story

              "Before our sweet son Abe’s MPS I diagnosis in 2024, we had no knowledge of MPS, no idea that we were...

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              3 Jun, 2025

                National MPS Society Welcomes Sharon King as Chief Operating Officer (COO)

                The National MPS Society is delighted to announce that Sharon King has joined the team as our inaugural Chief...

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