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Courage Pages

Welcome to Courage Pages! Creating a Courage Page provides an opportunity for your Family to share your unique story, including pictures, to assist you in raising awareness for MPS and related diseases. This page can be for in Honor or in Memory of someone with MPS or a related disease and can be used for Fundraising. What is important is that you decide!

Group photo at an MPS advocacy event
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Young girl in a superhero mask and cape at MPS awareness event

Our hope is that through Courage Pages, you are enabled to share your rare disease story with loved ones, friends, colleagues, physicians, legislators and anyone that wants to learn more about MPS and related diseases. Your story can include multiple photos and be updated as often by you as often as you like!

This is a terrific platform for raising funds and to tie into a fundraising event, you decide!

Families have raised over $100,000 through Courage Pages and allocated the funds as they wanted – whether this is for syndrome specific research, family support or legislative efforts.

Ready to get started?

First begin by registering for your new page!

Click here to create a Courage Page!

Need to update your Courage Page? Log in to your account and select “My Courage Pages”.  Click “see more” to edit and submit your new Courage Page!

Three friends at a cycling race to raise funds for MPS

Want to visit other Courage Pages?

Please scroll through the list of Families and Friends that have a Courage Page below and click the link to access their page. These can be viewed in alphabetical order by clicking on the arrows to the right of the Child’s Name header.

If you are interested in building your own webpage for your loved one it is easy! If you prefer for the Society to build the page for you, please contact us. If you need a form mailed to you please contact Amy Downen at or call 919.806.0101.

Courage Pages

Maritime Gala 2023

The National MPS Society exists to cure, support, and advocate for MPS and ML.

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Evan Abel

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Ashley Allen

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Aaron Athy

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Hunter Beam

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Ryder Belisle

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Colin Berning

Colin is a wonderful kid. He loves to play with kickballs. He has a deep, beautiful laugh. He has now gone on to…

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Keller Blakeley

Keller is a fun loving two year old little boy that loves his football team the Dallas Cowboys! He enjoys any sport…

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Jacob Bohley

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