Our hope is that through Courage Pages, you are enabled to share your rare disease story with loved ones, friends, colleagues, physicians, legislators and anyone that wants to learn more about MPS and related diseases. Your story can include multiple photos and be updated as often by you as often as you like!
This is a terrific platform for raising funds and to tie into a fundraising event, you decide! Families have raised over $100,000 through Courage Pages and allocated the funds as they wanted – whether this is for syndrome specific research, family support or legislative efforts.
Ready to get started?
First begin by registering for your new page! Register now.
We have created these detailed directions to help you with registering, creating and editing your page. We will do our very best to keep directions updated during software changes.
Already have an account? Log in to the left under Update Page.
Want to visit other Courage Pages?
Please scroll through the list of Families and Friends that have a Courage Page below and click the link to access their page. These can be viewed in alphabetical order by clicking on the arrows to the right of the Child’s Name header.
If you are interested in building your own webpage for your loved one it is easy! If you prefer for the Society to build the page for you, please contact us. If you need a form mailed to you please contact Rebecca Luchenbill at [email protected] or call 919.806.0101.