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Million Dollar Bike Ride
Million Dollar Bike Ride – June 8, 2024 Each year, the National MPS Society participates in the Million Dollar Bike Ride hosted by University of Pennsylvania’s Orphan Disease Center
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50 States for 50 Years
50 States for 50 Years The National MPS Society is excited to announce the "50 States for 50 Years" virtual 5k event, a nationwide celebration marking its 50th anniversary. Participants […]
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Links for Lucas Golf Outing
Links for Lucas 100 Wildcat Trl, Shellsburg, IA, United StatesLinks for Lucas Golf Outing Hosted by Lew and Stacey Montgomery
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5th Annual John “Lepe” Loy Memorial Golf Tournament
John Loy Memorial Golf Tournament 2340 Graffenburg Rd, Frankfort, NY, United StatesJoin us for the 5th Annual John "Lepe" Loy Memorial Golf Tournament Hosted by Don and Lynda Witte
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15th Annual cabi Fashion & Fundraiser Experience
Join us virtually for the 15th Annual cabi Fashion Fundraiser Hosted by Lynn Hopkins
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Setting Sails with… Wait. What’s It’s Name?
Stay tuned for an opportunity to get Matthew's sailing updates!
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Raleigh Run for Rare 2025
Raleigh Run for Rare 1400 Aviation Parkway, Morrisville, NC, United StatesJoin us for Raleigh Run for Rare 2025
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Napa Race for a Cure 2025
Napa Race for a Cure 2295 Streblow Dr, Napa, CA, United StatesJoin us for Napa Race for a Cure 2025
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Long Beach Race for Rare
Long Beach Race for Rare 5000 E Ocean Blvd, Long Beach, CA, United StatesJoin us for our 2025 Long Beach Race for Rare
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Delaware Dash for Rare 5K Run & 1 Mile Walk
Delaware Dash for Rare 1701 Delaware Ave #2329, Wilmington, DE, United StatesJoin us for our 2025 Delaware Dash for Rare 5K Run & 1 Mile Walk
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13th Do It ‘Fore’ Dan Golf Tournament
Moccasin Run Golf Course 402 Schoff Road Atglen PA 402 Schoff Road, Atglen, PA, United StatesJoin us for the 13th Annual Do It 'Fore' Dan Golf Tournament Hosted by Ray and Amy Miller

