Hosted by Lew and Stacey Montgomery
Lucas was the youngest of our four children. He has 3 older sisters and is the only one who was diagnosed with Sanfilippo syndrome. Our journey for answers took 8 years of seeing genetics, and specialists until finally, in 2006, at the age of 8, we finally received a diagnosis. We would spend the next years focusing on the here and now and keeping Lucas comfortable until he transcended in 2018. Our fundraising efforts began shortly after Lucas’ diagnosis in 2006. We have hosted numerous yearly awareness events, galas, golf outings, and walk/runs in addition to running an online clothing line called Lucas Gear. All of the profits we have raised over the past 17 years have been directed towards nonprofits for research for treatments for MPS and for families in need of medical supplies and equipment.