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MPS and ML Library

4 May, 2023

Our library includes details on each MPS and ML syndrome type, as well as fact sheets that cover a broad range of the MPS experience.


These links offer helpful information related to the MPS experience.

Disclaimer: The National MPS Society offers these suggested sites for additional information regarding MPS disorders. However, inclusion in this list does not constitute any real or implied endorsement of their content by the National MPS Society.

CountryOrganization NameContact
AustraliaMucopolysaccharide & Related Diseases Society Aust. LtdNational Office
Australian MPS Society
PO Box 131
VIC 3084
Ph: 1800 045 515
AustriaGesellschaft fur
Ph: 03 775 48 39
CanadaThe Canadian Society for Mucopolysaccharide and Related Diseases Inc.#218-2055 Commercial Drive
Vancouver, BC V5N 0C7
Ph: (604) 924-5130
Ph Toll Free: 1-800-667-1846
GermanyGesellschaft fur Mukopolysaccharidosen e. V.:Geschäfts- und Beratungsstelle:
Herstallstraße 35
63739 Aschaffenburg
Ph:0 60 21 - 85 83 73
Hong KongHong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group
ItalyAssociazione Italiana Mucopolisaccaridosi e Malattie Affini (ONLUS)Ph:+39 02 99010188
JapanThe Japanese Society of the Patients and Families with Mucopolysaccharidoses)
Ph:+39 02 99010188
BrazilBrazil Mucopolissacaridoses e outras doenas genticas
IrelandThe Irish MPS
NetherlandVolwassen, Kinderen en
NorwayMPS Society (Norway)
PolandPolish Society of Mucopolysaccharidosis (MPS) and Rare Diseases Ph Toll Free: +48 22 757 81 29
SwedenSvenska MPS
SpainSpain MPS
SwitzerlandVerein Mukopolysaccharidosen Schweiz
TaiwanTaiwan MPS
TurkeyMPS LH
United KingdomSociety for Mucopolysaccharide