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MPS and ML Library

4 May, 2023

Our library includes details on each MPS and ML syndrome type, as well as fact sheets that cover a broad range of the MPS experience.

Links

These links offer helpful information related to the MPS experience.

Disclaimer: The National MPS Society offers these suggested sites for additional information regarding MPS disorders. However, inclusion in this list does not constitute any real or implied endorsement of their content by the National MPS Society.

CountryOrganization NameContact
AustraliaMucopolysaccharide & Related Diseases Society Aust. LtdNational Office
Australian MPS Society
PO Box 131
Heidelberg
VIC 3084
info@199.48.134.250/~mps.au
Ph: 1800 045 515
AustriaGesellschaft fur MukoPolySaccharidosenoffice@mps-austria.at
Ph: 03 775 48 39
BelgiumBOKS VZWinfo@boks.be
CanadaThe Canadian Society for Mucopolysaccharide and Related Diseases Inc.#218-2055 Commercial Drive
Vancouver, BC V5N 0C7
Canada
Ph: (604) 924-5130
Ph Toll Free: 1-800-667-1846
info@199.48.134.250/~mps.au
GermanyGesellschaft fur Mukopolysaccharidosen e. V.:Geschäfts- und Beratungsstelle:
Herstallstraße 35
63739 Aschaffenburg
Ph:0 60 21 - 85 83 73
info@mps-ev.de
Hong KongHong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group
hkmpsinfo@gmail.com
HungaryMPS Tarsasagmpstarsasag@gmail.com
ItalyAssociazione Italiana Mucopolisaccaridosi e Malattie Affini (ONLUS)Ph:+39 02 99010188
info@mps-ev.de
JapanThe Japanese Society of the Patients and Families with Mucopolysaccharidoses)
Ph:+39 02 99010188
mps_office@mps-japan.Org
BrazilBrazil Mucopolissacaridoses e outras doenas genticas assemelhadassociedade@mpsbrasil.cjb.net
IrelandThe Irish MPS Societyirishmpssociety@gmail.com
NetherlandVolwassen, Kinderen en Stofwisselingsziekteninfo@stofwisselingsziekten.nl
NorwayMPS Society (Norway)mpsnorge@gmail.com
PolandPolish Society of Mucopolysaccharidosis (MPS) and Rare Diseases Ph Toll Free: +48 22 757 81 29
biuro@chorobyrzadkie.pl
SwedenSvenska MPS Foreningenmps.foreningen@gmail.com
SpainSpain MPS Societyinfo@mpsesp.org
SwitzerlandVerein Mukopolysaccharidosen Schweiz Schweizwiesbauer@swissonline.ch
TaiwanTaiwan MPS Societyttmps@ms32.hinet.net
TurkeyMPS LH Dernegimpsturk@gmail.org
United KingdomSociety for Mucopolysaccharide Diseasesmps@mpssociety.coorg.uk