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7 Nov, 2024

Researcher and Advocate: Dr. Kakkis

In the early days of his career, a young scientist named Emil Kakkis found himself deep in the world of...

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24 Jul, 2024

Update on Allievex and AX 250

 An Update on Allievex  Dearest Sanfilippo Community Members and Allies, It is with deep...

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27 Jul, 2021

Physical Therapy for Children With MPS and ML

Stacey C. Dusing, PT, MSAngela Rosenberg, DrPH, PTSadye Paez, PT, MSWendy Westphal, MPTReviewed and updated...

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3 Jun, 2020

Your Donation, Your Decision

Terri Klein, NPGC The National MPS Society is a 501(c)3 public charity nonprofit organization dedicated...

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3 Jun, 2020

Writing a Letter of Support

Amy Fisher, MSTerri Klein, NPGC Individuals with MPS and ML and their families often need to call on...

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3 Jun, 2020

Wish Organizations

Wish organizations were developed for children with life-threatening medical conditions who are between the...

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