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Press Releases

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12 May, 2025

    The Princess of the Family: Sebin’s Story

    Sebin, the third of four siblings, has spent nearly her entire life in the hospital, including time in the...

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    26 Mar, 2025

      The Invaluable Gift of Hope: Raelin’s Story

      "In 2018, our family welcomed our youngest daughter, Raelin, into the world. From the moment she was born,...

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      27 Jan, 2025

        A Mother’s Relentless Fight: Jacob’s Journey with MPS IIIB

        For most of his 10 years, Jacob has been a puzzle. Born prematurely, he faced challenges from the start....

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        7 Nov, 2024

        Researcher and Advocate: Dr. Kakkis

        In the early days of his career, a young scientist named Emil Kakkis found himself deep in the world of...

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        24 Jul, 2024

        Update on Allievex and AX 250

         An Update on Allievex  Dearest Sanfilippo Community Members and Allies, It is with deep...

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        27 Jul, 2021

        Physical Therapy for Children With MPS and ML

        Stacey C. Dusing, PT, MSAngela Rosenberg, DrPH, PTSadye Paez, PT, MSWendy Westphal, MPTReviewed and updated...

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