From Terri Klein, President & CEO:
Over four years ago, Dr. Matthew Ellinwood came to work side-by-side with the National MPS Society Board of Directors and team. I knew then that he was the perfect researcher to fill the inaugural role of Chief Scientific Officer (CSO). His accomplishments while building out the Science Program for the Society have been invaluable, and his astounding efforts in newborn screening, state advocacy, new networks, advocacy, and publications have shown us that the future is bright for the patient community.
It is with gratitude for his many years of service that I now share Matthew‘s intention to depart from his full-time role as CSO in the early spring of 2025.
Science is a vital mission of the National MPS Society, and while it is bittersweet to see him move away from a full-time capacity, we look forward to continued collaboration with Matthew in the future and the opportunity to bring a new CSO on board.
Congratulations Matthew!
“When I began my professional journey, I knew I wanted to find a role that allowed me to make a positive difference in the world. When I entered into the MPS field in 1998, I got to know MPS families, the Society, and my research colleagues, and I quickly knew I had found a scientific and career home. In the intervening quarter century, our broader community has accomplished so much! It is indeed impressive to think that beyond HSCT, we had no treatment options in 1998. We now have 5 drug approvals, national implementation of newborn screening for two MPSs, state screening for a third MPS disorder, and potential accelerated approval looming on the horizon for both gene therapy and second generation ERT.
As I depart from my active role next year, I do so knowing all of these tremendous and transformative accomplishments will continue, until we can reach every MPS and ML II/III patient with effective treatments at the optimal time for the best outcomes. The future is bright, and I know my successor will help our community move forward.
I also wanted to take this moment to thank you all for making this such a warm and gratifying community to work with. I feel so deeply lucky and blessed to have arrived within your midst, and to have done what I could to advance our shared mission goals.”
– Dr. Matthew Ellinwood
