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Announcing Tracy Kirby, Director of Development

4 Jan, 2022

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Tracy Kirby, Director of Development

Durham, NC

January 4, 2022 – The National MPS Society is pleased to announce the hiring of a new Director of Development, Tracy Kirby. Tracy’s experience in rare disease includes eight years working with the Batten Disease Support and Research Association (BDSRA) and providing consulting services. Her background includes family support, development, and years of conference planning. Her knowledge of lysosomal storage diseases will help the team at the Society steward crucial relationships, increase resources, and manage national events to serve our MPS and ML communities. Tracy shares:

I am excited and honored to be a member of this fantastic, hardworking team. Over the previous eight years I have met MPS families and advocates, board members, and staff. I have always been impressed with how well the families are connected, both to each other and the National MPS Society. Working for those families, and those who support them, is not a job to me, it is a privilege.

Being able to use the knowledge I have from my tenure at Batten Disease Support and Research Association (BDSRA) to guide and grow the fundraising goals of the Society is something I look forward to. The many facets of fundraising are ever-changing, and we will remain a leader in rare disease research and support, while we continue to work for a cure for MPS and ML.”

The Society feels enormously fortunate to welcome Tracy Kirby into this role at the Society. Her knowledge and understanding of patient families and the race to bring life-saving therapies to our community will provide the focus necessary to lead a strong Development Team. For more information, please visit

Lisa P. Todd
Chairman, Board of Directors

Terri L. Klein, MPA
President and CEO