"I believe a cure is possible and we will eliminate the challenges of MPS. Join us to make this a reality for Caylin Raines and all children living with MPS"

Caylin Raines

My name is Marti Raines, I am the mother of Caylin Raines who had Sanfilippo A
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Caylin's Story

Caylin was our social little butterfly and child that could do no wrong. She sure gave us a run for our money on the crazy things she did in life, life line the counters at night with stuff out of the fridge, pickup the neighbors newspapers or even leave Burger King through the fire exit that never went off. She was our miracle butterfly that never met a stranger except for the o e guy in McDonald’s play area that didn’t like the fact that she took his drink( party pooper). Her family loved her unconditionally but glad God gave us the chance to have her in it if only for a short period of time. She touched many and many more loved her for who she was. She will forever be our little butterfly, love you always Caylin Michelle

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The National MPS Society exists to cure, support and advocate for MPS and ML.

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