Adventures can take place inside, outdoors, traveling, or at home. For International MPS Awareness Day, we embrace opportunities to raise awareness about MPS and ML throughout the month of May! Join our initiatives and celebrate with us as we explore our world and share experiences with others.
Join us at Dorothea Dix Park on March 26, 2022 for the Raleigh Run for Rare. This event will feature a 5K run, 1 mile walk, and post-run family picnic at Harvey Hill. Register today!
The National MPS Society is pleased to announce the hiring of a new Director of Development, Tracy Kirby. Tracy’s experience in rare disease includes eight years working with the Batten Disease Support and Research Association (BDSRA) and providing consulting services. Her background includes family support, development, and years of conference planning. Her knowledge of lysosomal storage diseases will help the team at the Society steward crucial relationships, increase resources, and manage national events to serve our MPS and ML communities. Tracy
Our 2021 Winter edition of Courage is now available electronically to view or download! Click to read the latest information in research, clinical trials, family support, development, advocacy, and more. … Continued
This year’s science sessions at the Society’s 35th Annual Family Conference marked the first year of a full concurrent scientific session featuring more than a dozen speakers from the United States, Australia, and Europe and a diversity of presentations. We heard from six scientists who serve on our Scientific Advisory Board (SAB); 10 speakers were past, current, or new recipients of Society Innovative Research Grants.
The 35th Annual Family Conference, Connected Together, united 550 participants from 20 countries around the world. We recognize that we are stronger when we collaborate and learn from one another.
We are committed to funding research to find treatments and cures for those with MPS and ML. The National MPS Society is pleased to announce awards from Cycle I of the 2021 Innovative Research Grants Initiative. A total of $350,000 will be awarded from this cycle.
The National MPS Society exists to cure, support, and advocate for mucopolysaccharidosis (MPS) and mucolipidosis (ML). Thank you for your support and connection with this community. We are honored to … Continued
Each year the National MPS Society compiles an annual report. This report outlines key fundraising efforts and the work of our amazing committees. It also details the grants we have … Continued