Winter Courage
Our 2021 Winter edition of Courage is now available electronically to view or download! Click to read the latest information in research, clinical trials, family support, development, advocacy, and more. … Continued
North Carolina Signs Legislation for Newborn Screening to Support RUSP Alignment
The National MPS Society shares excellent news of the signing of HB 736 in North Carolina. The law is recognized as Recommended Uniform Screening Panel (RUSP) alignment legislation and provides a three-year timeline for the State to begin screening a newborn for a life-threatening condition. These are conditions that were recommended by the Department of Health and Human Services. This forward-thinking legislation implements a platform to save the lives of more than 500 babies each year.
Science Showcased at 35th Annual Family Conference
This year’s science sessions at the Society’s 35th Annual Family Conference marked the first year of a full concurrent scientific session featuring more than a dozen speakers from the United States, Australia, and Europe and a diversity of presentations. We heard from six scientists who serve on our Scientific Advisory Board (SAB); 10 speakers were past, current, or new recipients of Society Innovative Research Grants.
35th Annual Conference: Family Conference Recap
The 35th Annual Family Conference, Connected Together, united 550 participants from 20 countries around the world. We recognize that we are stronger when we collaborate and learn from one another.
Cycle I Innovative Research Grants Initiative Awards Announced
We are committed to funding research to find treatments and cures for those with MPS and ML. The National MPS Society is pleased to announce awards from Cycle I of the 2021 Innovative Research Grants Initiative. A total of $350,000 will be awarded from this cycle.