Sebin, the third of four siblings, has spent nearly her entire life in the hospital, including time in the...
"I was misdiagnosed at age seven with Spondyloepiphyseal dysplasia after early signs of skeletal...
In 2020, in the quiet hum of a hospital NICU, Lauryn and her husband began a journey no parent ever...
"In 2018, our family welcomed our youngest daughter, Raelin, into the world. From the moment she was born,...
The Wain family’s journey with MPS began in 1987 when their firstborn, Matthew, was diagnosed with MPS I....
"MPS II, also known as Hunter Syndrome, has been a part of my life for as long as I can remember. I grew...
For most of his 10 years, Jacob has been a puzzle. Born prematurely, he faced challenges from the start....
Autumn M. was diagnosed with Mucopolysaccharidosis VI (MPS VI) at just 18 months old, at a time when no...
