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23 May, 2023

Independent Living, Guidance for Parents

For many individuals, independent living means having every opportunity to be as self-sufficient as possible.

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27 Jul, 2021

Physical Therapy for Children With MPS and ML

Stacey C. Dusing, PT, MSAngela Rosenberg, DrPH, PTSadye Paez, PT, MSWendy Westphal, MPTReviewed and updated...

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3 Jun, 2020

Seizures

What is a Seizure?Seizures are neurologic episodes characterized by sudden disruption of the brain’s normal...

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3 Jun, 2020

Medical Records File for Family

This is an emergency medical information form. To download the form to print so you can fill it out, please...

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3 Jun, 2020

Port-A-Cath

Amy Holland A Port-a-Cath or Mediport (port) is a device for intravenous access in patients who require...

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3 Jun, 2020

Social Security

MPS and ML symptoms can range from dwarfism to intellectual disability and orthopedic issues to vision...

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3 Jun, 2020

Stem Cell Transplant Questions

Klane White, MD Stem cell transplantation can be an overwhelming prospect, especially for a family...

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3 Jun, 2020

Wish Organizations

Wish organizations were developed for children with life-threatening medical conditions who are between the...

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