Mobile Divider Image

Links and Resources

Press Releases

cork board with black and white photographs attached
  • Topic:
Clear Tags x
19 Nov, 2025

    When Life Gives You Lemons: Lilah’s MPS VI Journey

    When life gives you lemons, some people make lemonade. For Kimber and her daughter, Lilah, that simple...

    View Resource

    3 Jan, 2025

    A Life of Passionate Curiosity: Autumn’s Journey with MPS VI

    Autumn M. was diagnosed with Mucopolysaccharidosis VI (MPS VI) at just 18 months old, at a time when no...

    View Resource

    7 Nov, 2024

    Researcher and Advocate: Dr. Kakkis

    In the early days of his career, a young scientist named Emil Kakkis found himself deep in the world of...

    View Resource

    27 Jul, 2021

    Physical Therapy for Children With MPS and ML

    Stacey C. Dusing, PT, MSAngela Rosenberg, DrPH, PTSadye Paez, PT, MSWendy Westphal, MPTReviewed and updated...

    View Resource

    3 Jun, 2020

    Your Donation, Your Decision

    Terri Klein, NPGC The National MPS Society is a 501(c)3 public charity nonprofit organization dedicated...

    View Resource

    3 Jun, 2020

    Writing a Letter of Support

    Amy Fisher, MSTerri Klein, NPGC Individuals with MPS and ML and their families often need to call on...

    View Resource