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22 Sep, 2022

Newborn Screening Article Release

Matthew Ellinwood, Chief Scientific Officer, authored a new publication published in the American Journal of...

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3 Aug, 2022

DHHS adds MPS II to the RUSP for Newborn Screening in the United States

Click here to download full text.Durham, NC August 3, 2022 - The National MPS Society announces that...

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11 Feb, 2022

Advisory Committee on Heritable Disorders in Newborns and Children Votes to Approve MPS II for Recommended Uniform Screening Panel

Download Full Text Durham, NC February 11, 2022 - The National MPS Society announces that the Advisory...

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14 Nov, 2017

Sangamo treats first patient with gene therapy

Sangamo Therapeutics treated its first patient in the Phase 1/2 clinical trial ("the CHAMPIONS study")...

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22 Sep, 2017

Foundation offers assistance for Hunter Syndrome medical expenses

We know that medical expenses are always a headache, so we are excited to share some good news on the health...

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