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Press Releases

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17 Mar, 2025

    The Wain Family’s Journey

    The Wain family’s journey with MPS began in 1987 when their firstborn, Matthew, was diagnosed with MPS I....

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    12 Dec, 2024

    In Loving Memory: Eddie Bell Jr.

    Eddie James Bell Jr. was born on July 29, 1981, and brought love and light to all who knew him until his...

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    7 Nov, 2024

    Researcher and Advocate: Dr. Kakkis

    In the early days of his career, a young scientist named Emil Kakkis found himself deep in the world of...

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    11 Sep, 2024

    Benji: Strong, Confident, and Self-Assured

    Benji C. is a strong, confident, self-assured, loud, and determined 8-year-old with MPS I. When Benji was...

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    22 Sep, 2022

    Newborn Screening Article Release

    Matthew Ellinwood, Chief Scientific Officer, authored a new publication published in the American Journal of...

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    19 Nov, 2021

    North Carolina Signs Legislation for Newborn Screening to Support RUSP Alignment

    Download Full Text Durham, NC November 19, 2021 - The National MPS Society shares excellent news of...

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