Mobile Divider Image

Links and Resources

Press Releases

cork board with black and white photographs attached
  • Topic:
Clear Tags x
22 Sep, 2022

Newborn Screening Article Release

Matthew Ellinwood, Chief Scientific Officer, authored a new publication published in the American Journal of...

View Resource

3 Aug, 2022

DHHS adds MPS II to the RUSP for Newborn Screening in the United States

Click here to download full text.Durham, NC August 3, 2022 - The National MPS Society announces that...

View Resource

11 Feb, 2022

Advisory Committee on Heritable Disorders in Newborns and Children Votes to Approve MPS II for Recommended Uniform Screening Panel

Download Full Text Durham, NC February 11, 2022 - The National MPS Society announces that the Advisory...

View Resource

27 Jul, 2021

Physical Therapy for Children With MPS and ML

Stacey C. Dusing, PT, MSAngela Rosenberg, DrPH, PTSadye Paez, PT, MSWendy Westphal, MPTReviewed and updated...

View Resource

3 Jun, 2020

Your Donation, Your Decision

Terri Klein, NPGC The National MPS Society is a 501(c)3 public charity nonprofit organization dedicated...

View Resource

3 Jun, 2020

Writing a Letter of Support

Amy Fisher, MSTerri Klein, NPGC Individuals with MPS and ML and their families often need to call on...

View Resource