In the early days of his career, a young scientist named Emil Kakkis found himself deep in the world of...
"I was born with a rare disease without even knowing it," explains Fanny Z., a 14-year member of the Society...
Lucas was the youngest of four children. From the start, he stood out—not just as the baby of the family, but...
Benji C. is a strong, confident, self-assured, loud, and determined 8-year-old with MPS I. When Benji was...
Let us introduce you to Jacob Ray (J.R.) Anton, one of the many faces of MPS. J.R., who passed away...