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7 Nov, 2024

Researcher and Advocate: Dr. Kakkis

In the early days of his career, a young scientist named Emil Kakkis found himself deep in the world of...

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15 Oct, 2024

Fanny’s Journey with MPS IV A

"I was born with a rare disease without even knowing it," explains Fanny Z., a 14-year member of the Society...

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4 Oct, 2024

Lucas’s Legacy

Lucas was the youngest of four children. From the start, he stood out—not just as the baby of the family, but...

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11 Sep, 2024

Benji: Strong, Confident, and Self-Assured

Benji C. is a strong, confident, self-assured, loud, and determined 8-year-old with MPS I. When Benji was...

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9 Sep, 2024

J.R. Anton: A True Tar Heel

Let us introduce you to Jacob Ray (J.R.) Anton, one of the many faces of MPS. J.R., who passed away...

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