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Links and Resources

MPS and ML Library

Our library includes details on each MPS and ML syndrome type, as well as fact sheets that cover a broad range of the MPS experience.

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16 Feb, 2022

Raleigh Run for Rare

Join us at Dorothea Dix Park on March 26, 2022 for the Raleigh Run for Rare. For more information, click...

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14 Sep, 2020

Mucolipidosis Collaborative Research Network (MCRN)

Accelerating a Treatment for GNTAB-Related Disorders Richard Steet, Ph.D.Jennifer Klein, MS One...

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25 Jun, 2020

Mucolipidosis II, II/III and III a/b linked with sleep-disordered breathing

For years, families have recognized sleeping disorders are manifestations of Mucolipidosis (ML) II, II/III...

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26 May, 2020


T. Klein, President and CEONational MPS SocietyJ. Noble, Vice Chair ISMRD Children with Mucolipidosis...

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14 May, 2020


Although originally thought to be two separate diseases, ML II and ML III are both caused by deficiencies of...

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