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Press Releases

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22 Sep, 2025

    A Long Road: Kelley’s Journey to an MPS I Diagnosis

    Kelley grew up in Jersey City, where her childhood was shaped by both anxiety and resilience. She remembers...

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    22 Nov, 2024

    Free Activities at Disney to Boost Your 38th Annual Family & Scientific Conference Experience!

    We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual Family...

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    15 Nov, 2024

    Transportation at Walt Disney World

    We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual...

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    31 Oct, 2024

    Walt Disney World Guide for First-Timers

    We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual...

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    16 Oct, 2024

      2024 Fall Courage

      Our 2024 Fall edition of Courage is now available electronically to view or download! Click to read the...

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      1 Feb, 2023

      MPS Society 5K Run in Napa, CA

      On April 30th, in Napa, CA, we will host the MPS Napa Race for a Cure. Come out and enjoy a family day...

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      22 Sep, 2022

      Newborn Screening Article Release

      Matthew Ellinwood, Chief Scientific Officer, authored a new publication published in the American Journal of...

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      16 Feb, 2022

      Raleigh Run for Rare

      Join us at Dorothea Dix Park on March 26, 2022 for the Raleigh Run for Rare. For more information, click...

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