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Links and Resources

MPS and ML Library

Our library includes details on each MPS and ML syndrome type, as well as fact sheets that cover a broad range of the MPS experience.

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1 Feb, 2023

MPS Society 5K Run in Napa, CA

On April 30th, in Napa, CA, we will host the MPS Napa Race for a Cure. Come out and enjoy a family day...

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22 Sep, 2022

Newborn Screening Article Release

Matthew Ellinwood, Chief Scientific Officer, authored a new publication published in the American Journal of...

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16 Feb, 2022

Raleigh Run for Rare

Join us at Dorothea Dix Park on March 26, 2022 for the Raleigh Run for Rare. For more information, click...

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27 Dec, 2021

Winter Courage

Our 2021 Winter edition of Courage is now available electronically to view or download! Click to read...

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27 Jul, 2021

Science Showcased at 35th Annual Family Conference

National MPS Society CSO Dr. Matthew Ellinwood participates in a question and answer session with Dr....

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14 Sep, 2020

Neurological Management of MPS

Natural History of MPS Disorders - What Do We Know About Cognition Over Time?Elsa Shapiro, PhD,...

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14 Sep, 2020

Orthopedic and Respiratory Management

Orthopedic Management of the MucopolysaccharidosesKlane White, MD Dr. Klane White provides a visual...

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2 Nov, 2017

Society awards MPS and ML research grants

The National MPS Society's annual research program has awarded $405,000 in funding for additional research...

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