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Press Releases

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  • Topic: News
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11 Sep, 2025

    Celebrating Progress and Demanding More: the National MPS Society Celebrates Newborn Screening Month

    September is National Newborn Screening Awareness Month—a time to reflect on the life-saving power of early...

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    10 Jun, 2025

      Thriving with Gene Therapy: Abe’s Story

      "Before our sweet son Abe’s MPS I diagnosis in 2024, we had no knowledge of MPS, no idea that we were...

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      3 Jun, 2025

        National MPS Society Welcomes Sharon King as Chief Operating Officer (COO)

        The National MPS Society is delighted to announce that Sharon King has joined the team as our inaugural Chief...

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        12 May, 2025

          The Princess of the Family: Sebin’s Story

          Sebin, the third of four siblings, has spent nearly her entire life in the hospital, including time in the...

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          15 Apr, 2025

          National MPS Society Applauds Renewed Progress for TA-ERT (MPS IIIB) Program Under Spruce Biosciences Leadership

          Durham, NC — April 15, 2025 — The National MPS Society welcomes the news that Spruce Biosciences is now...

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          8 Apr, 2025

          A Lifetime of Love in 2.5 Years: Blakely Mae’s Enduring Legacy

          In 2020, in the quiet hum of a hospital NICU, Lauryn and her husband began a journey no parent ever...

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          31 Mar, 2025

          National MPS Society Responds to Dr. Peter Marks’ Resignation

          The Society praises Dr. Marks' leadership at the FDA and urges continued strong leadership to advance MPS...

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          26 Mar, 2025

            The Invaluable Gift of Hope: Raelin’s Story

            "In 2018, our family welcomed our youngest daughter, Raelin, into the world. From the moment she was born,...

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