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Press Releases

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8 Apr, 2025

A Lifetime of Love in 2.5 Years: Blakely Mae’s Enduring Legacy

In 2020, in the quiet hum of a hospital NICU, Lauryn and her husband began a journey no parent ever...

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22 Nov, 2024

Free Activities at Disney to Boost Your 38th Annual Family & Scientific Conference Experience!

We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual Family...

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15 Nov, 2024

Transportation at Walt Disney World

We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual...

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31 Oct, 2024

Walt Disney World Guide for First-Timers

We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual...

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16 Oct, 2024

    2024 Fall Courage

    Our 2024 Fall edition of Courage is now available electronically to view or download! Click to read the...

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    1 Feb, 2023

    MPS Society 5K Run in Napa, CA

    On April 30th, in Napa, CA, we will host the MPS Napa Race for a Cure. Come out and enjoy a family day...

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