The first Care for Rare - Maverick's Walk to a Cure event will be held on Saturday, November 18 at Prince Hill Park in Brooklyn, Connecticut. Registration begins at 9:00am and the walk will start at 10:00am. Join us as we walk to spread awareness and raise money for research for MPS I.
Million Dollar Bike Ride – June 8, 2024 Each year, the National MPS Society participates in the Million Dollar Bike Ride hosted by University of Pennsylvania’s Orphan Disease Center
50 States for 50 Years The National MPS Society is excited to announce the "50 States for 50 Years" virtual 5k event, a nationwide celebration marking its 50th anniversary. Participants from across the country are invited to walk or run in honor or memory of someone they love, uniting to support those affected by MPS […]
Links for Lucas Golf Outing Hosted by Lew and Stacey Montgomery
Join us for the 5th Annual John "Lepe" Loy Memorial Golf Tournament Hosted by Don and Lynda Witte
Join us virtually for the 15th Annual cabi Fashion Fundraiser Hosted by Lynn Hopkins
Join us for the 12th Annual Do It 'Fore' Dan Golf Tournament Hosted by Ray and Amy Miller
Join us for the 7th Annual MPS Chili Cook-Off Hosted by Beth Kramer
Join us for Post Office Cafe's 33rd Annual 5k Run & 1k Fun Run In Celebration of Mark and Casey Lessing Hosted by the Lessing Family
Stay tuned for an opportunity to get updates with where Matthew is sailing to!
Join us for Raleigh Run for Rare 2025
