35th Annual National MPS Society Family Conference, 2021

Virtual

SAVE THE DATE! -- Join us June 19-20 and 26-27 for our 35th Annual Family Conference!   Taking place virtually, this conference will focus around the theme of remaining connected and the overlap within diagnoses, but highlight and recognize the uniqueness of each through individualized sessions for each syndrome type. The conference features clinicians, scientists, … Continued

Raleigh Run for Rare

Dorothea Dix Park 805 Ruggles Drive, Raleigh, NC

Join us at Dorothea Dix Park on March 26, 2022 for the Raleigh Run for Rare. For more information, click here to visit our run registration website.  This event will feature a 5K run, 1 mile walk, and post-run family picnic at Harvey Hill. Register today! 

Napa MPS Race for a Cure

Kennedy Park 2295 Streblow Drive, Napa, CA

Celebrate the 6th Annual Napa MPS Race for a Cure on May 1, 2022. This event will be held at Kennedy Park. The event will feature a 5K run, 1 mile walk, family picnic, raffle, and silent auction!  For more information, click here to visit our run registration website.

Million Dollar Bike Ride

U Penn Campus Philidelphia 125 S. 31st Street, Philadelphia, PA

Join us on June 11, 2022 for the Million Dollar Bike Ride. Click here to visit the Million Dollar Bike Ride website for more information. 

National MPS Society Walk and Roll 5K Run and 1-Mile Family Walk

Centennial Park 2500 West End Avenue, Nashville, TN

The MPS Walk and Roll 5K Run and 1-Mile Walk will take place on Saturday, August 6 as a part of the Annual Family Conference! Transportation will be provided to and from the event, which will be held at Centennial Park. Check back for more information regarding departure times. For more information, click here to … Continued

Long Beach Sprint to Save 5K Run and 1 Mile Walk

Shoreline Aquatic Park 200 Aquarium Way, Long Beach, CA

Join us for the first annual Long Beach Sprint to Save event! This 5K run and 1 mile walk will be held at Shoreline Aquatic Park on September 10. For more information, click here to visit our run registration website. 

Do It Fore Dan Golf Tournament

Moccasin Run Golf Course 402 Schoff Road, Atglen, PA

The 10th Annual Do It 'Fore' Dan Golf Tournament will be held on Friday, October 7th at the Moccasin Run Golf Course. This event will raise money for medical research seeking cures and treatments for MPS. Please visit the Do It Fore Dan website to learn more about registration and sponsorship options.   Register for the … Continued

31st Annual Post Office Café 5K Run and 1K Fun Run

Post Office Cafe 130 W. Main Street, Babylon, NY

The 31st Annual Walk/Run will be held at the Post Office Café in celebration of Mark and Casey Lessing. The 1K Fun Run will begin at 9:30 AM and the 5K Run will begin at 10:00 AM on Saturday, October 15th. There will also be an option to participate virtually. Register for the Run using … Continued

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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