Post Office Cafe’s 30th Annual 5K Run & 1K Fun Run

Post Office Cafe 130 W. Main Street, Babylon, NY

This year is the 19th Annual National MPS Society Run/Walk, and PO's 30th Annual SK & 1 K Fun Run. This event will take place in many cities across the nation to raise awareness and funds for the National MPS Society. In our community, the Walk/Run will be held at the Post Office Cafe in … Continued

Raleigh Run for Rare

Dorothea Dix Park 805 Ruggles Drive, Raleigh, NC

Join us at Dorothea Dix Park on March 26, 2022 for the Raleigh Run for Rare. For more information, click here to visit our run registration website.  This event will … Continued

Napa MPS Race for a Cure

Kennedy Park 2295 Streblow Drive, Napa, CA

Celebrate the 6th Annual Napa MPS Race for a Cure on May 1, 2022. This event will be held at Kennedy Park. The event will feature a 5K run, 1 … Continued

Million Dollar Bike Ride

U Penn Campus Philidelphia 125 S. 31st Street, Philadelphia, PA

Join us on June 11, 2022 for the Million Dollar Bike Ride. Click here to visit the Million Dollar Bike Ride website for more information. 

Long Beach Sprint to Save 5K Run and 1 Mile Walk

Shoreline Aquatic Park 200 Aquarium Way, Long Beach, CA

Join us for the first annual Long Beach Sprint to Save event! This 5K run and 1 mile walk will be held at Shoreline Aquatic Park on September 10. For … Continued

Do It Fore Dan Golf Tournament

Moccasin Run Golf Course 402 Schoff Road, Atglen, PA

The 10th Annual Do It 'Fore' Dan Golf Tournament will be held on Friday, October 7th at the Moccasin Run Golf Course. This event will raise money for medical research … Continued


  On Sunday, March 18th REGENXBIO will be participating in the Rock ‘n’ Roll D.C. event benefiting the National MPS Society. A cross-functional group of 50 REGENXBIO team members will … Continued

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Contact Us Family Support Programs