News

Current Support Sessions

Thank you for your interest in the MPS/ML Support Sessions. This page will be maintained to provide details for active and upcoming Zoom webinar sessions. All sessions are free and open to members of the National MPS Society and to individuals and families with MPS and ML internationally. To sign up to receive regular emails … Continued

34th Annual Family Conference

Join us for the 34th annual family conference, located in Music City! Nashville, Tennessee on July 16-18 is the site of this year’s biggest gathering for families and individuals with MPS and ML. The conference will be held at the Sheraton Music City Hotel, in close proximity to the airport and to downtown Nashville. Click … Continued

2020 Events

We have events on each coast and in between to raise money to support families diagnosed with MPS and ML, please join us at a few!

Angels Among Us: Remembering Our Loved Ones

Each year we remember individuals with MPS and ML who have passed away but who remain in our thoughts and hearts. We invite you to join us in reading about and remembering our cherished friends and family. 

2019 Annual General Membership Meeting

The National MPS Society hosts an Annual General Membership meeting to provide updates and report back to our membership. We are here to support you! This took place via webinar on Tuesday, November 19, 2019. Click the link below to review the webinar and learn about the work of the Society over the past year.

2019 National MPS Society Annual Fund

The 2019 Annual Fund is underway! Meet Jason Madison, Chair of the 2019 Annual Fund. Jason was diagnosed with MPS II (Hunter Syndrome) at the age of six after his mother watched his uncle suffer similar symptoms. Jason Madison and the National MPS Society hope that your family will make a difference by giving to … Continued

2018 Annual Report

Our annual report outlines key fundraising efforts and work of the committees over the past year. Within the annual report are details of the grants awarded and financial statements. The National MPS Society provides funding for research, support to families, and works to advocate for cures for MPS and ML. Click here to read the … Continued

#MPSAwareness Purple Bird Contest

Families across the country received purple birds to help raise awareness! These birds traveled around the world to spread the word about MPS. Families and individuals with MPS submitted pictures of the adventures of their purple birds. These were shared on Facebook and voted on to determine the winner of the contest for this year! … Continued

International MPS Awareness Day

May is a very special month for the National MPS Society. The Society and its members celebrate International MPS Awareness Day on May 15 and on that day we: Honor everyone in the MPS and ML community Recognize all the children and adults diagnosed with MPS and ML Think about the loved ones we have … Continued

United States Clinical Trial News

The National MPS Society recognizes research and clinical trials for MPS and ML exist around the world.  We are pleased to share some ongoing clinical trials, with current enrollment, listed below.  For more information about ongoing clinical trials, please visit: www.clinicaltrials.gov. Please contact Terri Klein for any additional questions.   Hurler Syndrome ( MPS I … Continued