Our Virtual Family Conference has concluded but registered attendees can still access it on-demand through October 12th!
National MPS Society Bake Sale and Bake Off starts October 30 - November 7!
Support sessions for caregivers of individuals with Sanfilippo Syndrome (MPS III) will take place on Tuesday, August 4 and Tuesday, August 18.
Now recruiting patients born in: California, Michigan, New Jersey, New York This study is also recruiting any patients in any state who have privately banked cord blood and would provide a single-drop sample. Please contact Leslie Urdaneta directly if interested. This study is available to patients with MPS II, III, IV, VI, and VII born … Continued
With a nod to our 45 year history, the 2019 Annual Report outlines the amazing work of our committees, and highlights key efforts in fundraising, research, and support over the past year.
This is a second round of funding for the 2020 Society Research Program.
Congratulations to all of this year's recipients! We're proud to share their stories and support their journeys.
This beautiful quilt represents over 20 years of love and commitment to an organization we believe really helps families through the entire MPS journey.
The National MPS Society is pleased to announce the hiring of its inaugural Chief Scientific Officer (CSO), N. Matthew Ellinwood, D.V.M. Ph.D.
For years, families have recognized sleeping disorders are manifestations of Mucolipidosis (ML) II, II/III and III a/b. Still, there have been limited studies conducted and limited objective data. A recent longitudinal study out of Paris, France has now provided new insights around sleep-disordered breathing. Patients of the Lysosomal Disease Center of Neckar Hospital were studied … Continued