News

2019 Annual General Membership Meeting

The National MPS Society hosts an Annual General Membership meeting to provide updates and report back to our membership. We are here to support you! This took place via webinar on Tuesday, November 19, 2019. Click the link below to review the webinar and learn about the work of the Society over the past year.

2019 National MPS Society Annual Fund

The 2019 Annual Fund is underway! Meet Jason Madison, Chair of the 2019 Annual Fund. Jason was diagnosed with MPS II (Hunter Syndrome) at the age of six after his mother watched his uncle suffer similar symptoms. Jason Madison and the National MPS Society hope that your family will make a difference by giving to … Continued

2018 Annual Report

Our annual report outlines key fundraising efforts and work of the committees over the past year. Within the annual report are details of the grants awarded and financial statements. The National MPS Society provides funding for research, support to families, and works to advocate for cures for MPS and ML. Click here to read the … Continued

#MPSAwareness Purple Bird Contest

Families across the country received purple birds to help raise awareness! These birds traveled around the world to spread the word about MPS. Families and individuals with MPS submitted pictures of the adventures of their purple birds. These were shared on Facebook and voted on to determine the winner of the contest for this year! … Continued

International MPS Awareness Day

May is a very special month for the National MPS Society. The Society and its members celebrate International MPS Awareness Day on May 15 and on that day we: Honor everyone in the MPS and ML community Recognize all the children and adults diagnosed with MPS and ML Think about the loved ones we have … Continued

United States Clinical Trial News

The National MPS Society recognizes research and clinical trials for MPS and ML exist around the world.  We are pleased to share some ongoing clinical trials, with current enrollment, listed below.  For more information about ongoing clinical trials, please visit: www.clinicaltrials.gov. Please contact Terri Klein for any additional questions.   Hurler Syndrome ( MPS I … Continued

Research Grants Program 2019

The Research Grant Program for 2019 is officially open. In 2019 the Society will continue funding research with the goal of finding treatments and cures for MPS and ML. The Letter of Intent application is now available for innovative research projects that involve clinical research, basic research, and translational studies.  Register here to begin the application process. General registration … Continued

MPS Race for a Cure at Napa!

The National MPS Society will host a chip-timed 5K Run and Memorial Walk at the beautiful campus of Napa Valley College followed by a family picnic and carnival as well as drawing, prizes, a silent auction, and live music throughout!