On behalf of the 15th International Symposium on MPS and Related Diseases, the Scientific Program Delegates announce the Scientific Program Oral Presenters this August 2 – 4, 2018 in San Diego, California. Selections were led by our Program Delegates: Patricia Dickson, M.D. Harbor UCLA Medical Center Lorne Clarke, M.D. University of British Columbia, Canada Brian Bigger, Ph.D. University of Manchester, United Kingdom … Continued
The May edition of our Courage newsletter is now available for viewing. Read it here!
The international community celebrates MPS Awareness Day each year on May 15. In an effort to spread awareness about MPS during the month of May, we’ve created this calendar with activities on each day that help promote MPS awareness. We will be posting reminders on Facebook and Twitter, so be sure to follow us and … Continued
Don’t miss this exciting opportunity to learn about new and innovative treatments, meet researchers from around the globe, and increase your network of friends and families! The symposium is an opportunity for the MPS and related diseases community to share and exchange new information and develop strategies to keep us moving forward. This event … Continued
Once again, Team MPS will be participating in the Million Dollar Bike Ride on May 20th. This event, hosted by Penn Medicine Orphan Disease Center, is critical for funding research for MPS and ML. Whether you come to Philadelphia and ride as part of the team or make a donation toward our $50,000 goal, we are counting … Continued
The National MPS Society funds research that may lead to treatments for MPS and ML diseases and solicits applications for innovative research projects that involve clinical research, basic research and translational studies. The application for Letter of Intent is now available. Register here to begin the application process. General registration questions can be directed here. The grant … Continued
Data confirm highly promising biomarker for MPS VI and limited enzyme replacement therapy (ERT) efficacy in reducing leukoGAGs Inventiva, a biopharmaceutical company developing innovative therapies in MPS, recently announced the positive outcomes of a biomarker study to evaluate intracellular glycosaminoglycans (GAGs) levels in leukocytes as a disease activity biomarker in MPS VI. To read the full … Continued
RARE Scholars, an annual scholarship for students living with rare disease, aims to empower patients with continued education by recognizing students who have demonstrated leadership and participation in school and community activities. The RARE Scholars program distributes up to $20,000 each year in June, awarding $5,000 for undergraduate four-year or graduate studies or $2,500 for … Continued
The latest version of Courage is now available! Click here to see the latest news and announcements from the National MPS Society.
The National MPS Society will be hosting a timed 5K Run and Memorial Walk this spring. Registration begins at 8:30 a.m. Timed 5K begins at 10:00 a.m. 1 mile memorial walk begins at 10:15 a.m. Early bird pricing and discounted family registration is available now! LEARN MORE AND REGISTER HERE Picnic! Carnival! Drawing! Prizes! … Continued