News

International MPS Awareness Day

May is a very special month for the National MPS Society. The Society and its members celebrate International MPS Awareness Day on May 15 and on that day we: Honor everyone in the MPS and ML community Recognize all the children and adults diagnosed with MPS and ML Think about the loved ones we have … Continued

United States Clinical Trial News

The National MPS Society recognizes research and clinical trials for MPS and ML exist around the world.  We are pleased to share some ongoing clinical trials, with current enrollment, listed below.  For more information about ongoing clinical trials, please visit: www.clinicaltrials.gov. Please contact Terri Klein for any additional questions.   Hurler Syndrome ( MPS I … Continued

Research Grants Program 2019

The Research Grant Program for 2019 is officially open. In 2019 the Society will continue funding research with the goal of finding treatments and cures for MPS and ML. The Letter of Intent application is now available for innovative research projects that involve clinical research, basic research, and translational studies.  Register here to begin the application process. General registration … Continued

MPS Race for a Cure at Napa!

The National MPS Society will host a chip-timed 5K Run and Memorial Walk at the beautiful campus of Napa Valley College followed by a family picnic and carnival as well as drawing, prizes, a silent auction, and live music throughout! 

MPS Awareness Day is May 15

Each year we celebrate MPS Awareness Day on May 15. On that day we acknowledge and thank those that work tirelessly to research treatments and cures, but also to recognize the families and individuals diagnosed with MPS and ML and the challenges they constantly overcome. 

Applications for 2019 Research Grants Program are now Being Accepted

The National MPS Society is proud to announce that the Research Grant Program for 2019 is officially open. In 2019 the Society will continue funding research with the goal of finding treatments and cures for MPS and ML. The Letter of Intent application is now available for innovative research projects that involve clinical research, basic research, and … Continued