The National MPS Society shares excellent news of the signing of HB 736 in North Carolina. The law is recognized as Recommended Uniform Screening Panel (RUSP) alignment legislation and provides a three-year timeline for the State to begin screening a newborn for a life-threatening condition. These are conditions that were recommended by the Department of Health and Human Services. This forward-thinking legislation implements a platform to save the lives of more than 500 babies each year.
The 2021 Annual Fund is underway! Learn more about our Annual Fund Chair, Stephanie Bozarth, and the importance of this critical campaign for our mission.
The Big Bake for MPS and ML is in full swing! Click here to learn more about this event.
Researchers at Nemours/Alfred I. duPont Hospital for Children (AIDHC) in Delaware have received funding from the NIH to complete a study to evaluate the natural history of Morquio A syndrome (MPS IVA). Study aims and objectives are as follows: Morquio A disease is a devastating systemic skeletal disease in which detailed progression and pathogenesis remain … Continued
Spread MPS awareness this holiday season with bundled and discounted items in our logo wear store!
Every year, the National MPS Society produces an annual report. This report outlines key fundraising efforts and the work of our amazing committees. It also details the grants we have subsidized and invested, as well as our financials.
This year’s science sessions at the Society’s 35th Annual Family Conference marked the first year of a full concurrent scientific session featuring more than a dozen speakers from the United States, Australia, and Europe and a diversity of presentations. We heard from six scientists who serve on our Scientific Advisory Board (SAB); 10 speakers were past, current, or new recipients of Society Innovative Research Grants.
Congratulations to recipients of the National MPS Society's Scholarships! These are awarded to individuals with MPS or ML, their siblings, parents, and children as they pursue higher education. We are pleased to recognize these deserving recipients and acknowledge their hard work!
The 35th Annual Family Conference, Connected Together, united 550 participants from 20 countries around the world. We recognize that we are stronger when we collaborate and learn from one another.
We are committed to funding research to find treatments and cures for those with MPS and ML. The National MPS Society is pleased to announce awards from Cycle I of the 2021 Innovative Research Grants Initiative. A total of $350,000 will be awarded from this cycle.