2020 Annual Report

Every year, the National MPS Society produces an annual report. This report outlines key fundraising efforts and the work of our amazing committees. It also details the grants we have subsidized and invested, as well as our financials.

Science Showcased at 35th Annual Family Conference

This year’s science sessions at the Society’s 35th Annual Family Conference marked the first year of a full concurrent scientific session featuring more than a dozen speakers from the United States, Australia, and Europe and a diversity of presentations. We heard from six scientists who serve on our Scientific Advisory Board (SAB); 10 speakers were past, current, or new recipients of Society Innovative Research Grants.

2021 National MPS Society Annual Fund

The 2021 Annual Fund is underway! Learn more about our Annual Fund Chair, Stephanie Bozarth, and the importance of this critical campaign for our mission.

National MPS Society Scholarship Recipients

Congratulations to recipients of the National MPS Society's Scholarships! These are awarded to individuals with MPS or ML, their siblings, parents, and children as they pursue higher education. We are pleased to recognize these deserving recipients and acknowledge their hard work!

35th Annual Conference: Family Conference Recap

The 35th Annual Family Conference, Connected Together, united 550 participants from 20 countries around the world. We recognize that we are stronger when we collaborate and learn from one another.

Cycle I Innovative Research Grants Initiative Awards Announced

We are committed to funding research to find treatments and cures for those with MPS and ML. The National MPS Society is pleased to announce awards from Cycle I of the 2021 Innovative Research Grants Initiative. A total of $350,000 will be awarded from this cycle.

Social Media Group

We are looking for people interested in supporting our social media efforts and engaging with us virtually! If you are interested, email Leslie Urdaneta for more information!

35th Annual Family Conference

Mark your calendars to join us June 18-20 and 26-27 for our 35th Annual Family Conference! The conference will be held virtually, with sessions taking place across four days. Our theme, Connected Together, will focus on similarities within syndrome types and collaboration.

International MPS Awareness Day: MPS I Materials

Many thanks to Sanofi Genzyme for providing materials for our MPS I community to utilize to raise awareness of MPS I on International MPS Awareness Day, May 15! We invite you to use these resources to spread the word and bring attention to this diagnosis.