Social Media Group

We are looking for people interested in supporting our social media efforts and engaging with us virtually! If you are interested, email Leslie Urdaneta for more information!

35th Annual Family Conference

Mark your calendars to join us June 18-20 and 26-27 for our 35th Annual Family Conference! The conference will be held virtually, with sessions taking place across four days. Our theme, Connected Together, will focus on similarities within syndrome types and collaboration.

International MPS Awareness Day: MPS I Materials

Many thanks to Sanofi Genzyme for providing materials for our MPS I community to utilize to raise awareness of MPS I on International MPS Awareness Day, May 15! We invite you to use these resources to spread the word and bring attention to this diagnosis.

Angels Among Us: Remembering Our Loved Ones

Each year we remember individuals with MPS and ML who have passed away but who remain in our thoughts and hearts. We invite you to join us in reading about and remembering our cherished friends and family. 

National MPS Society at the 17th Annual WORLDSymposium

The National MPS Society exists to cure, support, and advocate for mucopolysaccharidosis (MPS) and mucolipidosis (ML). Thank you for your support and connection with this community. We are honored to participate in the 17th Annual WORLDSymposium. Please contact us for more information or resources. Science and Research Research is at the forefront of our mission, … Continued

COVID-19 and MPS/ML: Information and Support

New Frequently Asked Questions on COVID-19, vaccine distribution, and the impacts on the rare disease community. Click through for some common answers from our CSO and Scientific Advisory Board.

Courage Magazine – December 2020

Our December issue of printed Courage is out now, just in time for the holidays! It features 60 full-color pages of stories, family spotlights, program updates, science & research news, fundraising efforts, and more.