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Latest News

Our Voices Episode 15: Grief, Legacy, and Hope with Dr. Klane White

LAUNCHING JULY 25, 2023 Dr. White speaks with host Jason Madison about his personal connection with MPS, and…

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Our Voices Episode 14: The Journey of a Biochemical Genetic Fellow with Mary Kate LoPiccolo

Dr. Mary Kate LoPiccolo connects with host Jason Madison to discuss medical biochemical genetics and working as a new…

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37th Annual Family & Scientific Conference

You are invited to join us in Bethesda, Maryland for our 37th Annual Family Conference! Located just outside of…

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