We can’t wait to host you in Denver, CO, on August 7-9, 2025, for three days full of learning, support, and connection. Adults 18+ with MPS and ML are also invited to participate in the SPIRIT Conference on Friday, August 8th. We hope to see you there!
Join us for an unforgettable evening in Boston, MA, on October 11, 2025, as we commemorate a remarkable milestone – 50 years of hope, progress, and support – at the National MPS Society’s 50th Anniversary Masquerade Gala!
Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.
Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.
The National MPS Society is proud to offer a Media Toolkit—a resource designed to help you raise your voice, share…
“Before our sweet son Abe’s MPS I diagnosis in 2024, we had no knowledge of MPS, no idea that we were carriers of…
The National MPS Society is delighted to announce that Sharon King has joined the team as our inaugural Chief…
Please help us find a cure and help those in need.
Join us for our 2025 Delaware Dash for Rare 5K Run & 1 Mile Walk
Join us for the 13th Annual Do It ‘Fore’ Dan Golf Tournament Hosted by Ray and Amy Miller
Don't forget to submit your photo for our commemorative photo collage! 💜 📸
Help us honor the incredible individuals who’ve shaped our journey for the last 50+ years by submitting one photo of your loved one (living or remembered) for this powerful tribute.
🗓️ Deadline: July 15, 2025
📷 Limit: One image per person
📩 Send to: tamara.cullere@mpssociety.org
#MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
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Did you know that there are many different ways to support the National MPS Society? For example, the DECA members at Lockport High School collected donations for the Society for their year-end project. We're so grateful for the creativity and thoughtfulness of these teens! 🤩💜
Want to start your own fundraiser? Reach out to Bethany Greene (bethany@mpssociety.org) for support a resources!
#MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
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🚨 Calling all MPS & ML families in Oregon and surrounding areas 🚨
You're invited to join us on Sunday, July 27th at Hidden Creek Park West for a Crossing Paths event. Meet our wonderful team members and connect with other MPS and ML families in your community while you enjoy free food and fun 💜
Register now: ow.ly/xew250WcvS5
#MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
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