Mobile Divider Image

Links and Resources

Press Releases

cork board with black and white photographs attached
  • Topic:
Clear Tags x
26 Mar, 2025

    The Invaluable Gift of Hope: Raelin’s Story

    "In 2018, our family welcomed our youngest daughter, Raelin, into the world. From the moment she was born,...

    View Resource

    17 Mar, 2025

      The Wain Family’s Journey

      The Wain family’s journey with MPS began in 1987 when their firstborn, Matthew, was diagnosed with MPS I....

      View Resource

      17 Mar, 2025

        Spring 2025 Courage

        Click here to read the latest edition of Courage online, or click here to download a PDF copy.

        View Resource

        13 Mar, 2025

        Racing Against Time: the Torbert Family’s Story

        "MPS II, also known as Hunter Syndrome, has been a part of my life for as long as I can remember. I grew...

        View Resource

        5 Feb, 2025

          National MPS Society Appoints Dr. Scott Loiler as Chief Scientific Officer

          DURHAM, N.C. (February 5, 2025) – The National MPS Society is pleased to announce the appointment of Dr....

          View Resource

          27 Jan, 2025

            A Mother’s Relentless Fight: Jacob’s Journey with MPS IIIB

            For most of his 10 years, Jacob has been a puzzle. Born prematurely, he faced challenges from the start....

            View Resource

            15 Jan, 2025

            Angels Among Us: Remembering Our Loved Ones

            Angels Among Us: Remembering Our Loved Ones Each year, we remember individuals with MPS or...

            View Resource

            3 Jan, 2025

            A Life of Passionate Curiosity: Autumn’s Journey with MPS VI

            Autumn M. was diagnosed with Mucopolysaccharidosis VI (MPS VI) at just 18 months old, at a time when no...

            View Resource