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Press Releases

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19 Nov, 2025

    When Life Gives You Lemons: Lilah’s MPS VI Journey

    When life gives you lemons, some people make lemonade. For Kimber and her daughter, Lilah, that simple...

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    23 Oct, 2025

      Courage – Fall 2025 Edition Now Available

      The Fall 2025 edition of our Courage magazine is now available online. Click here to view it, or click here...

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      23 Oct, 2025

        Rarest in the Family: Juliette (MPS III)

        When Jemma and Joey met as college students at Kansas State University, they could never have imagined how...

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        8 Oct, 2025

          Small but Mighty: Kashton (MPS II)

          On any given afternoon in Oklahoma, you can expect to find two-year-old Kashton busy doing the things he...

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          22 Sep, 2025

            A Long Road: Kelley’s Journey to an MPS I Diagnosis

            Kelley grew up in Jersey City, where her childhood was shaped by both anxiety and resilience. She remembers...

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            11 Sep, 2025

              Celebrating Progress and Demanding More: the National MPS Society Celebrates Newborn Screening Month

              September is National Newborn Screening Awareness Month—a time to reflect on the life-saving power of early...

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              24 Jun, 2025

              Media Toolkit

              The National MPS Society is proud to offer a Media Toolkit—a resource designed to help you raise your voice,...

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              10 Jun, 2025

                Thriving with Gene Therapy: Abe’s Story

                "Before our sweet son Abe’s MPS I diagnosis in 2024, we had no knowledge of MPS, no idea that we were...

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