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Press Releases

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8 Oct, 2025

    Small but Mighty: Kashton (MPS II)

    Small But Mighty: Kashton (MPS II) On any given afternoon in Oklahoma, you can expect to find two-year-old...

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    22 Sep, 2025

      A Long Road: Kelley’s Journey to an MPS I Diagnosis

      Kelley grew up in Jersey City, where her childhood was shaped by both anxiety and resilience. She remembers...

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      11 Sep, 2025

        Celebrating Progress and Demanding More: the National MPS Society Celebrates Newborn Screening Month

        September is National Newborn Screening Awareness Month—a time to reflect on the life-saving power of early...

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        24 Jun, 2025

        Media Toolkit

        The National MPS Society is proud to offer a Media Toolkit—a resource designed to help you raise your voice,...

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        10 Jun, 2025

          Thriving with Gene Therapy: Abe’s Story

          "Before our sweet son Abe’s MPS I diagnosis in 2024, we had no knowledge of MPS, no idea that we were...

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          3 Jun, 2025

            National MPS Society Welcomes Sharon King as Chief Operating Officer (COO)

            The National MPS Society is delighted to announce that Sharon King has joined the team as our inaugural Chief...

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            12 May, 2025

              The Princess of the Family: Sebin’s Story

              Sebin, the third of four siblings, has spent nearly her entire life in the hospital, including time in the...

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              7 May, 2025

              Waiting for a Diagnosis for More Than 30 Years: Dana’s Story

              "I was misdiagnosed at age seven with Spondyloepiphyseal dysplasia after early signs of skeletal...

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