Social Media Group

We are looking for people interested in supporting our social media efforts and engaging with us virtually! If you are interested, email Leslie Urdaneta for more information!

35th Annual Family Conference

Mark your calendars to join us June 18-20 and 26-27 for our 35th Annual Family Conference! The conference will be held virtually, with sessions taking place across four days. Our theme, Connected Together, will focus on similarities within syndrome types and collaboration.

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Upcoming Events

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