Join us in Orlando, FL, from December 19th to the 21st. You can click the register now button to visit our conference registration site and learn more. We look forward to celebrating the 50th anniversary of the National MPS Society with MPS/ML friends and family from across the nation!
The Annual Fund helps the Society provide funding for several key programs like Family Support, Pathways, and more.
Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.
Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.
We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual Family &…
In the early days of his career, a young scientist named Emil Kakkis found himself deep in the world of academic…
We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual Family &…
Please help us find a cure and help those in need.
Join us for our 2024 MPS Jingle Bell 5K Run and One-Mile Walk
TONIGHT 🤩: ow.ly/ampf50U9iGz
#MPS #ML #raredisease #hurlersyndrome #HunterSyndrome #sanfilippo #morquiosyndrome #MaroteauxLamySyndrome #slysyndrome #hyaluronidasesyndromeWe hope to see you there! Register now: ow.ly/ampf50U9iGz
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Tomorrow is the LAST DAY to secure your spot on the back of our Jingle Bell 5K event shirts 🏃♀️ Don’t miss out—sign up today to honor and celebrate our incredible MPS and ML community: ow.ly/IVbz50TZLQW
#JingleBell5K #MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndromeCalling all families and teams! Register for the Jingle Bell 5K by November 20th to secure your spot on the back of our event shirts 🏃♀️
Make your team name part of this holiday tradition as we race, jingle, and cheer for a cure. Don’t miss out—sign up today to honor and celebrate our incredible MPS and ML community: ow.ly/IVbz50TZLQW
#JingleBell5K #MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
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