Join us in Orlando, FL, from December 19th to the 21st. You can click the register now button to visit our conference registration site and learn more. We look forward to celebrating the 50th anniversary of the National MPS Society with MPS/ML friends and family from across the nation!
The Annual Fund helps the Society provide funding for several key programs like Family Support, Pathways, and more.
Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.
Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.
Our 2024 Fall edition of Courage is now available electronically to view or download! Click to read the latest…
“I was born with a rare disease without even knowing it,” explains Fanny Z., a 14-year member of the Society with…
Lucas was the youngest of four children. From the start, he stood out—not just as the baby of the family, but as the…
Please help us find a cure and help those in need.
Join us for Post Office Cafe’s 33rd Annual 5k Run & 1k Fun Run In Celebration of Mark and Casey Lessing Hosted…
Join us for our 2024 MPS Jingle Bell 5K Run and One-Mile Walk
Don't forget to join our Youth Advocacy webinar TONIGHT at 7 PM EST! Registration links for tonight's event and tomorrow's encore can be found in the original post 😊If you haven't already, don't forget to register for one of the TWO available times for our upcoming Youth Advocacy Webinar!
Register for the October 17th event: ow.ly/fhiN50Ts4BJ
Register for the October 18th event:https://ow.ly/HWwQ50Ts4BI
We can't wait to see you there 🥰
#MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
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Registration is still open for the 38th Annual Family Conference! Make sure you register to join us this December in Orlando, FL, for a truly magical event 😉🏰💜
Register today: ow.ly/tnuR50TMZJN
Photo courtesy of Julia R.
#MPS #ML #raredisease #hurlersyndrome #HunterSyndrome #sanfilippo #morquiosyndrome #MaroteauxLamySyndrome #slysyndrome #hyaluronidasesyndrome
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Fanny, who has Morquio Syndrome (MPS IV A), has been a member of the Society for 14 years and recently decided to share her story!
"MPS IV A has made my life a roller coaster, but it does not define me," she said. "I love life and I have hope for a better tomorrow."
Read Fanny's story now: ow.ly/u5Nm50TM5Sy
#MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
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You are beautiful Fanny Zambrano! Thank you for being you!
