Join us in Orlando, FL, from December 19th to the 21st. You can click the register now button to visit our conference registration site and learn more. We look forward to celebrating the 50th anniversary of the National MPS Society with MPS/ML friends and family from across the nation!
The Annual Fund helps the Society provide funding for several key programs like Family Support, Pathways, and more.
Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.
Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.
Eddie James Bell Jr. was born on July 29, 1981, and brought love and light to all who knew him until his passing on…
We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual Family &…
We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual Family &…
Please help us find a cure and help those in need.
We had so much fun with you all over the last couple of days... Mark your calendars for when we do it all again next year at the 39th Annual Family & Scientific Conference in Denver, Colorado! 🎉🥳
#NationalMPSSociety #MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
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Closer to home for us!! Hoping to make this one 💜
Proud to attend the National MPS Society conference. Great sessions, connections, and as always getting to spend very special time with the families and the children. Hope is in the air. ❤️
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