Join us in Orlando, FL, from December 19th to the 21st. You can click the register now button to visit our conference registration site and learn more. We look forward to celebrating the 50th anniversary of the National MPS Society with MPS/ML friends and family from across the nation!
The Annual Fund helps the Society provide funding for several key programs like Family Support, Pathways, and more.
Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.
Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.
We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual Family &…
We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual Family &…
In the early days of his career, a young scientist named Emil Kakkis found himself deep in the world of academic…
Please help us find a cure and help those in need.
Join us for our 2024 MPS Jingle Bell 5K Run and One-Mile Walk
🌟✨ Don’t Miss the Magic – Register for the 38th Annual Family & Scientific Conference! ✨🌟
Join us December 19-21, 2024, in Orlando, Florida, for an unforgettable experience at the National MPS Society’s 38th Annual Family & Scientific Conference! Together, we’ll explore groundbreaking research, connect with others in the MPS and ML community, and honor the incredible journey of our Society over the last 50 years.
🎢 And the magic doesn’t stop there! 🌈 This year’s event takes place next door to Walt Disney World! Make your trip even more memorable by setting aside time to enjoy the parks and create lasting memories with your loved ones.
📅 Don’t wait –the registration fee goes up November 28th!
🌐 Register now: ow.ly/8Svn50UcZR5
✨ Check out our free Disney tips: ow.ly/e0C850UcZOp
Whether you’re coming for the science, the connections, or the celebrations, this is one conference you won’t want to miss. Let’s make magic together in Orlando! 🏰💜
#NMPSSC24 #NationalMPSSociety #50Years #DisneyWorld #MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
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A Walt Disney World Guide for members who are planning on visiting before or after attending the 38th Annual Family & Scientific Conference.0 CommentsComment on Facebook
Joan Eppehimer, aunt to board member Jason Madison, recently joined the Forrager podcast to discuss her popcorn business-- and, along the way, she spread the word about #MPS and the Society! Check it out: ow.ly/t3Pv50UaQ1L
#MPS #ML #raredisease #hurlersyndrome #HunterSyndrome #sanfilippo #morquiosyndrome #MaroteauxLamySyndrome #slysyndrome #hyaluronidasesyndrome
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Worth the listen! I loved hearing the back story. Joan didn't share all of these details!
📢 The RDCRN Diversity Committee needs your help! They’re seeking individuals from rare disease communities—patients and caregivers—to participate in a study aimed at understanding barriers that prevent underrepresented racial and ethnic populations from joining rare disease clinical trials and research studies.
🔍 Details:
A series of three focus groups will be held from December 11, 2024, through February 25, 2025. Learn more and get involved: ow.ly/nMmn50Uaeaz
Please help spread the word by sharing the recruitment flyer across your networks— together, we can help make rare disease research more inclusive and representative. 💜
#RareDiseases #DiversityInResearch #PatientVoices
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