Sister bond inspires giving:
2017 Annual Fund
Dear Friends, We ask that you join our family and support the National MPS Society by donating to the 2017 Annual Fund. The Society provides a sense of community and …
Your medical data = $1,000!
Complete your ConnectMPS registration and survey and enter to win a gift card worth $1,000
Your medical data could be worth $1,000. Register and complete the survey at ConnectMPS and you will be entered to win a $1,000 gift card. All signups must happen before …
2017 Annual Family Conference
We would like to thank all our attendees, families, presenters and sponsors for making our 31st Annual Family Conference a great one! While this year’s conference is over, you don’t …
2016 Annual Report
Take a look back at 2016
2016 Annual Reports have gone out in the mail, so keep an eye out for yours! If you’d like a digital copy, please view or download it here.
A Night Under the Big Top Boston Gala- October 14, 2017
On October 14, the National MPS Society is hosting our inaugural gala event in Boston, featuring a live and silent auction. Proceeds from this auction will help fund research for …
Minneapolis Madness for MPS Walk/Run
5K and Memorial Walk to benefit those affected by MPS and ML
Thank you to all who attended and sponsored this walk/run! The University of Minnesota campus was a lovely venue for the event. Donations are still being accepted for our fundraising …
2017 research grant program open
Each year, the National MPS Society awards deserving medical researchers grants to pursue treatments and cures for MPS and ML. In 2016, the MPS Society awarded $485,000 in grant funding. …
MPS organizations and PatientCrossroads have formed the first pan-mucopolysaccharidosis online patient registry
DURHAM, N.C. — With the click of a mouse, patients with a rare disease will now be one step closer to cures for mucopolysaccharidosis and mucolipidosis. The National MPS Society, …
Mucopolysaccharidoses (MPS) and related diseases are genetic lysosomal storage diseases (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body.