MPS Awareness Day is May 15
Join us to spread awareness!
On May 15, the National MPS Society, along with the international MPS community, celebrates International MPS Awareness Day. On this day, we remember all the children and adults who suffer …
2017 research grant program open
Letters of intent due May 20
Each year, the National MPS Society awards deserving medical researchers grants to pursue treatments and cures for MPS and ML. In 2016, the MPS Society awarded $485,000 in grant funding. …
Working toward a cure
Research, grants fund clinicians in the MPS and ML space
As part of the National MPS Society’s mission, we are dedicated to finding cures for MPS and ML. With the help of our Scientific Advisory Board, we fund research exploring …
2017 Annual Family Conference – registration now open!
The National MPS Society is pleased to announce that the 2017 Annual Family Conference will be held in Minneapolis, MN at Hilton Minneapolis on August 3rd – 5th. Registration is …
Napa Valley Walk/Run
5K and Memorial Walk to benefit those affected by MPS and ML
DATE: May 21 – Sunday TIME: 8:30 am Registration 10:00 am – 5K Run 10:15 am – 1 Mile Walk Veterans Home of California 100 California Drive Yountville, CA 94599 …
Million Dollar Bike Ride
The National MPS Society invites you to attend the Million Dollar Bike Ride! Once again, #Team MPS will be participating in the MDBR for Rare Diseases hosted by Penn Medicine Orphan …
MPS organizations and PatientCrossroads have formed the first pan-mucopolysaccharidosis online patient registry
DURHAM, N.C. — With the click of a mouse, patients with a rare disease will now be one step closer to cures for mucopolysaccharidosis and mucolipidosis. The National MPS Society, …
Teen's wish is to raise awareness for MPS
Like any teenage girl, Alli Williams, 17, has a wish. While being a bit taller is on her list, she is truly dedicated to one singular goal — raising awareness …
Mucopolysaccharidoses (MPS) and related diseases are genetic lysosomal storage diseases (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body.