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Save the Date – 2016 Family Conference!
Our 2016 Family Conference will be August 4th through 6th in Columbus, Ohio. Additional conference information will be posted on our website, social media, and mailed to members in February. …
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National MPS Society Receives Second Consecutive Four-Star Charity Rating
The National MPS Society is honored to share that we have received our second consecutive Four-Star charity rating from Charity Navigator! This rating ranks the Society in the top 21% …
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2015 MDBR MPS Grant Awards
2015 Million Dollar Bike Ride MPS Grant Awards Announced!
The National MPS Society and The Ryan Foundation teamed up this past spring to ride for research. TEAM MPS raised $50,000. The Annual Event hosted by Penn Medicine Orphan Disease …
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Give to the 2015 Annual Fund: Chairs, Jim and Amy Yard
The Annual Fund has become a critical funding source for the National MPS Society. It funds our Family Support programs, legislative advocacy work, and operations of the Society. This year …
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2015 Research Grants Awarded
The National MPS Society has allocated $429,500 in grant funding for 2015!
About MPS
Mucopolysaccharidoses (MPS) and related diseases are genetic lysosomal storage diseases (LSD) caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body.
Get Involved
Education/Publicity
The Education and Publicity Committee provides an array of educational materials to assist our families and their communities, researchers and physicians in the journey of MPS.
Family Support
The Family Support Committee connects families to resources and provides conference scholarships, financial assistance for medical goods, continuing education scholarships.
Fundraising
The Fundraising Committee provides mentors and marketing tools to help fundraising hosts achieve success.