Our mission is to serve those impacted by mucopolysaccharidosis (MPS) and mucolipidosis (ML). These are rare genetic diseases with no cures. We support research, provide families with invaluable resources, and work to increase public and professional awareness.
One family is seeking to raise $20 million to move a life-saving therapy forward for their children, Poppy and Oliver (MPS IIIB), and every other Sanfilippo child still waiting for a treatment.
If 800,000 people give just $25, they can make it happen.
How you can help: click here to make a donation today, or share Poppy and Oliver’s story to help spread the word!
Have you or your child recently been diagnosed with MPS or ML, or is your child undergoing diagnostic testing? We are here to help and can connect you with the information you need.
Donations to the National MPS Society allow us to support families affected by MPS and ML, fund medical research to find cures for these diseases and keep the public engaged and informed.
Families are the linchpin of our community, and whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.
We raise money to provide student fellowships and fund research projects. We participate in and host technical conferences that allow researchers to collaborate. We collaborate with other patient support groups and foundations to fund research. Learn about our recent grants and research updates.
The Fall 2025 edition of our Courage magazine is now available online. Click here to view it, or click here to…
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Please help us find a cure and help those in need.
This week, members of our team are attending the NORD Breakthrough Summit in Washington, D.C.
We’re proud to join leaders, advocates (like Zach, pictured with Terri and Leslie!), and innovators from across the rare disease community to share insights, raise awareness, and champion progress.
#RareSummit2025 #NORDSummit #MPSAwareness #RareDisease #AdvocacyInAction #NationalMPSSociety
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🎭 What an unforgettable night in Boston! 🎭
Thank you to everyone who joined us to celebrate the National MPS Society’s 50th Anniversary Masquerade Gala! The energy, joy, and generosity in the room were incredible. 💜
Because of your support, we raised $450,000 to fund life-changing research, support families, and bring us closer to a future without MPS and ML.
This milestone was a celebration of 50 years of hope, love, and community—and we couldn’t have done it without you. From the bottom of our hearts, thank you! 💫
#MPS #ML #RareDisease #HurlerSyndrome #HunterSyndrome #Sanfilippo #MorquioSyndrome #MaroteauxLamySyndrome #SlySyndrome #HyaluronidaseSyndrome
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