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  • Tháng 12 2025

  • T6 12
    Tháng 12 12 @ 8:00 chiều - 9:00 chiều

    Adult Resource Committee (ARC) Virtual Winter Social

    Virtual Event

    Join the Adult Resource Committee for a virtual winter social on December 12, 2025, at 9 PM ET.

    Miễn phí
  • T3 16
    Tháng 12 16 @ 8:00 chiều - 9:00 chiều

    Pathways Resource Group

    Virtual Event

    A diagnosis of MPS often brings unexpected financial challenges. To help families navigate available support, we’re grateful to welcome Stephanie Marshall from The Assistance Fund (TAF) to our next Pathways group. TAF is a patient assistance organization that supports individuals and families living with MPS I, II, and VII, and all community members are invited to attend. […]

  • T4 17
    Tháng 12 17 @ 6:00 chiều - 7:00 chiều

    Advocacy Meeting

    Virtual Event

    Join the National MPS Society for its December Advocacy meeting!

    Miễn phí
  • Tháng 3 2026

  • T7 28
    2025 Raleigh Run for the Cure
    Tháng 3 28, 2026 @ 9:30 sáng - 1:00 chiều

    Raleigh Run for Rare 5K and 1-Mile Walk

    Lake Crabtree Park 1400 Aviation Pkwy, Morrisville, NC, United States
    Fundraiser

    Join us for a timed 5K run & walk event, beginning at 9 AM on Saturday, March 28, 2026.

  • Tháng 4 2026

  • CN 26
    Tháng 4 26, 2026 @ 7:30 sáng - 1:00 chiều

    Napa Race for a Cure 5K and 1-Mile Walk

    Kennedy Park 2295 Streblow Dr, Napa, CA, United States
    Fundraiser

    Join us for a timed 5K run & walk event, beginning at 9 AM on Sunday, April 26, 2026.

  • Tháng 7 2026

  • T5 30
    Tháng 7 30, 2026 - Tháng 8 1, 2026

    40th Annual Family & Scientific Conference

    Fundraiser

    The National MPS Society invites you to attend its 40th Annual Family & Scientific Conference in Cincinnati, OH, on July 31-August 2, 2026.

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